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Challenging diagnosis & seeking trial off involuntary treatment

Challenging diagnosis & seeking trial off involuntary treatment

Hello,

Thank you to anyone who takes the time to read this and has any advice to offer. It's a long one so bear with me please.

My Dad (68) has been under an involuntary treatment (community, not hospital-based) order for paranoid schizophrenia with delusional tendencies for the past 17 years. His behaviour doesn't put himself or others at risk, his delusions relate to environmental factors in his home and diet purportedly negatively affecting his health (e.g. the paint in his home, non-organic foods etc).

He has always, from day one, objected to the diagnosis and fought treatment - to the point of even evading Police who come to escort him to hospital for depot (injections) of [edited by moderatored]. During the course of his treatment, he has continued to display many of the same behaviours despite being medicated.

Given his objections and constant absconding from treatment, in March this year Queensland Health transitioned him from a monthly dosage of **mg via injection to ***mg [edited by moderator] via injection every six months. Since then, he has continued to show many of the same delusional tendencies, if not having escalated somewhat. He has also been fairly tangential in his thought process and discussions.

Less than two weeks ago, he started suffering (or claiming to suffer, I can't confirm as I live far away) from shortness of breath, chest pains, lethargy and inability to complete relatively easy tasks. Purportedly due to factors in his home. Not being able to withstand the symptoms anymore he presented to his local hospital emergency where they did tests and confirmed no signs of any heart or lung issues, or causes of same. During the visit though, they administered a further medication [edited by moderator]; despite him being only four months into what was supposed to be a six-monthly dosage, which was - in itself - above the ***mg/month dosage he had been receiving and claimed negative health effects from. [edited by moderator]

Since that time he has been even more delusional. In the past week, for the first time ever, he mentioned to me that he thought his home had been broken into multiple times and items taken; and also that whoever broke in had found the location of his keys by listening to his phone calls or monitoring him via the camera in his computer. He's never displayed such delusions before.

So, I'm wondering - if his delusions are exacerbated by increased dosages - is there something that can be done to challenge the dosage? And, if his delusions have never been resolved by treatment, is the diagnosis correct? Is the antipsychotic he is being treated with actually working? Should he be granted a trial off his treatment, or at least have the dosage lowered? Noting that he will not agree to voluntary treatment and will continue to abscond from any dosage, as he challenges the objection.

I have no idea how to navigate the complex Queensland mental health system to support him. And I'm not qualified to challenge the validity of his diagnosis. I can tell you that he still has bouts of severe delusions, but I have not tracked how these time with his involuntary objections. Is there anything that I can do to support him?

12 replies

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In response to: Challenging diagnosis & seeking trial off involuntary treatment

Re: Challenging diagnosis & seeking trial off involuntary treatment

Hi @JoK86 , How are things going for your dad and yourself?

In response to: Challenging diagnosis & seeking trial off involuntary treatment

Re: Challenging diagnosis & seeking trial off involuntary treatment

Hey @JoK86, thanks for sharing your dad's experiences here with the community!

Sounds like you and your dad are going through quite a bit, and it would not be easy to navigate if you live far away. Schizophrenia is a spectrum disorder, which means that it can change and develop

at any time, even with medications and treatment. Antipsychotics don't necessarily work the same for all people and can be ineffective in relieving symptoms altogether.

Antipsychotics are the first line of treatment by medical professionals whether you are in the community or an inpatient. The prescribing doctor may lean towards particular medications and prescribe what they beleive is the best option for the patient. In cases of voluntary treatment the patient may have more choice and control over what they are prescribed. And often as different medications work differently for different people it can take time to find the medication that works best for the individual.

I have done some research into involunty treatment authorities in Queenland and I have found a few avenues that you could pursue on behalf of your dad:

I'm not sure if you are the legal guardian for your dad but that is a step you could take in his treatment to give you more options to support him.

1.4 Guardians

The Queensland Civil and Administrative Tribunal (QCAT) may appoint one or more guardians for a personal matter, including health matters, for a person who does not have capacity for the matter. In making this appointment, the QCAT sets the terms and conditions of the appointment. Subject to the terms of the appointment, a guardian may consent to the person’s treatment and care at a time when the person does not have capacity. A guardian does not have the power to consent for special health matters, such as electroconvulsive therapy.

(Mental Health Act 2016, Guide to Advance Health Directives, Enduring Powers of Attorney, Guardians and Administrators, 1.4 Guardians, 3/8/2025, https://www.health.qld.gov.au/__data/assets/pdf_file/0028/950428/Guide-to-AHD-EPOA-etc.pdf)

Your dad should be having regular assessments by an authorized doctor ever 3 months and should have tribunal reviews every 12 months. These could be an opportunity for you to highlight that your dad's medications are making his symptoms more severe and his wellbeing is being affected.

2.1 Regular assessment by authorised doctor

The following requirements relate to regular assessment of a person subject to a Treatment Authority once confirmed by an authorised psychiatrist. A patient subject to a Treatment Authority must be regularly assessed by an authorised doctor at intervals of not more than three (3) months.

(Mental Health Act 2016 Chief Psychiatrist Policy, Treatment Authorities, 2.1 Regular assessment by authorised doctor, 3/8/2025, https://www.health.qld.gov.au/__data/assets/pdf_file/0022/630823/pg_treatment_authorities.pdf)

2.2 Mental Health Review Tribunal reviews

Key points

The Tribunal must conduct regular reviews of the patient's Treatment Authority as follows:

• an initial review within twenty-eight (28 days) of the Treatment Authority being made,

• a second review within six (6) months of the initial review,

• a third review within six (6) months of the second review, and

• thereafter at intervals of not more than twelve (12) months. In addition, a review may be made on the Tribunal's own initiative or on an application made by the patient, their appointed nominated support person/s or another person with sufficient interest, or the Chief Psychiatrist.

(Mental Health Act 2016 Chief Psychiatrist Policy, Treatment Authorities, 2.2 Mental Health Review Tribunal reviews, 3/8/2025, https://www.health.qld.gov.au/__data/assets/pdf_file/0022/630823/pg_treatment_authorities.pdf)

I also encourge you to contact an advocacy organisation as they may be more familiar with the process and may be able to support you and your dad.

@tyme referred you earlier to the Hearing Voices and Psychosis thread and I encourge you to connect with your peers there as their may be other Members who have had similar experiences.

I hope this is of some support for you and your dad and please continue to connect and ask the community questions!

Take care

RiverSeal

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