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Friends, families and carers

Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Welcome to the Friends, Family and Carers Group Hub!

would you like to have a cuppa and chat , we are here for you

Letting you know that you are not alone my friends

353 replies

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In response to: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Hope you are relaxing @Cuddlebear , @RebelliousAngel , @Chasingsunsets , @AlwaysMyself 😊

Guess what , another coffee ☕️-- yes or no ?

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Hey @Shaz51, I reckon it's time for a cuppa 😀

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Yaaaaa thanks @RebelliousAngel 😊

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

@Shaz51 i shall flick my kettle on 😀

In response to: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Glad Mr @Shaz51 's scan appointment went well today.

My day was good/productive. Did more cooking. Made a pumpkin stew, potato bake, and some beef.

@Chasingsunsetsyep. The app works wonders for ensuring they have it before I go. I really wish I could get frappe with the points too 😪. But instead I use my points for free mcFlurries lol. But now you can only get their standard mcflurries with points, not their limited time ones.

As for cochlear implant experiences, they can really vary. Its not a guaranteed successful implantation in terms of how well you will recieve/process the signal. I dont understand much of that technical side, other than there are "succesful", "partially successful", and "unsucessful" (weak) outcomes. But having said that, I had a friend who had an "unsucessful" implant (was said that she'd be able to hear sounds but not great clarity, eg not able to use phones etc). However she put in a lot of work with auditory-training and was able to understand speech and use a phone with it (she had to do this blindfolded because she is a great lip reader too 🤣) - having had hearing aids also made the process of learning to interpret the sounds easier too I understand.

Interestingly I have one friend who got implants as an adult because they can improve/reduce tinnitus. He didnt care about actually hearing things, but wanted the tinnitus gone.

But I have another friend who got implants as a very young child, but once finishing university decided to stop using them because they got headaches and tinnitus from the focusing on hearing and processing things!

So that seems to go either way? But i think I've heard more deaf say theyve reduce tinnitus than caused it.

Of course having cochlear implants (or hearing aids) is great for a good night sleep. Snoring partners and flushing toilets or noisy neighbours do not bother them at all. 😅 but if you're getting cochlear, your residual natural hearing is probably low enough that you wouldn't hear those things whilst asleep anyway lol.

If you have any specific questions, im happy to reach out and ask my friends 😊. But keeping in mind all my cochlear-friends have also learned sign language at some time during their journey -- there are sooo many more cochlear users who never learn sign language and just rely on their cochlear implant 😊.

I think i heard that some implants now can even be safe for MRI. That's pretty cool I think!

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

You have been busy my friend 🧡 @AlwaysMyself

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

@Cuddlebear @AlwaysMyself @Chasingsunsets @rav3n

2 weeks ago I emailed the lifeline volunteering staff team that I wanted to leave the digital crisis supporter role. The volunteer lead (very lovely lady by the way) responded to my email. She was empathetic, kind and understanding. But other than myself wanting to leave (even though she respected my decision on that), I was also given an option to have a 1:1 session with her to discuss what went wrong and if there’s anything she can do to best support me throughout the role, even for my next upcoming placement shift. So I accepted the opportunity to have the 1:1 session, and I had that session this afternoon, and since then I’ve now been feeling more at ease, and my anxiety and worries surrounding the role have decreased which is great. 😊 I have my next placement shift booked for next Thursday and I want to attend that shift, since my first placement shift was 2 months ago, and the good thing, she’s going to be my supervisor for that Thursday’s shift!! Honestly, if i didn’t choose to have the 1:1 session with her, I would have made the formal decision to leave volunteering from lifeline completely, as well as keep withdrawing shifts. But now I’m so glad I didn’t and that I’ve chose to talk my concerns out to her. 😊

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Interesting @AlwaysMyself

I sleep with my hearing aid on due to my tinnitus

@Cuddlebear , @Chasingsunsets

In response to: Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

@Blackcloud that is so good to hear!! I am so glad she was respectful and also offered to chat to you about it, and that you were brave and took that opportunity. And wow sounds like a great outcome that you feel you can try the volunteering shift again and have them supporting you better through it. 🥰😍

@Shaz51 oh, sleeping with it on? Well then you will get woken by snoring and flushing toilets then lol.

Do you ever accidently knock them out in your sleep? 🤭

Im such a restless sleeper that I have lost earrings a few times, and pulled my cpap cord off my mask soo many times 😆. I would definitely have hearing aids fall out too I think haha.

Hope you are able to have a think about what you do or dont want re: hearing options, and ask people and doctors questions if you have any. I guess the good thing is that you dont have to make a quick decision - you can always wait and decide in the future if you decide you do want more hearing later, right?

In response to: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

Re: Friends, Family and Carers, Fancy a Cuppa and a Chat, Connect now

@Chasingsunsets oooooh the pineapple/passion fruit juice sounds like it tastes good! Never tried them obviously but I’d love to one day! And yess I made the carrot juice again this afternoon after I had the 1:1 session with the volunteer lead today. 😊

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