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Janice_22Senior Contributor
I thought my jaw pain was bruxism but have noticed I can't keep my tongue still and and am pursing my lips all the time. I was on an anti psychotic for 8 months and stopped due to extreme akasthesia. My psych was dismissive of my symptoms but the website says Tardive dyskinesia can happen during or after stopping and can be permanent. Very upset
wasn't warned about this risk.
In response to: Extremely worried
tymeModerator
Hey @Janice_22 ,
Welcome to the forums. I'm sorry to hear about your concerns at the moment. I can see why you'd be worried.
Do you have another doctor you can speak to?
I wonder if these symptoms will disappear after a while.
In response to: Extremely worried
Mathew76Senior Contributor
It may not be be tardive dyskinesia and it will go away.
But you have brought up something that is coming our way as mental health consumers if it is not here already.
The brand new fashion in psychiatry or medicine is.....
tada...
De- prescribing.
So, tapped on the shoulder by their professional indemnity provider your average Dr Plod, suddenly decides in a whirlwind of intellectual and moral fervour dr (he/she or it),
is going to deprescribe!
And you as a patient are going to discover a few things.
Like:
your doctor cares more about their comfortable retirement than you,
you have a pain in your left shoulder that won't go away and wakes you up at night,
you feet seem to swell and you get pins and needles,
the issues that lead you to be prescribed the medication are no longer relevant,
your nervous system is going to feel like a car with a timing belt on the way out...
you are in fact alone.
A bit of psychoeducation may reveal you;
know more about the side effects of medication than your dr does,
you may become a bit annoyed to discover,
there are hundreds and in fact thousands of people in Australia coping with this latest great trend in Australian general medicine and psychiatry,
and you are another pioneer in this great new wave.
In response to: Re: Extremely worried
Shaz51Senior Contributor
Hello and hugs @Janice_22 ❤️❤️
When do you see the doctor xx
In response to: Re: Extremely worried
Janice_22Senior Contributor
In response to: Re: Extremely worried
rav3nSenior Contributor
sorry to hear you weren't taken seriously @Janice_22 you 100% deserve a support team that validates and hears you. sounds like your counsellor understands how important this is, hoping the discussion with the psychiatrist will help him support you better next time. appreciate your courage in reaching out 💙
In response to: Re: Extremely worried
tymeModerator
Hey @Janice_22 , how are you feeling now? I can certainly relate to not being taken seriously by mental health clinicians... it hurts
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
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