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Life can be a Pain

Life can be a Pain

Hi @BlueBay@Zoe7@Former-Member@Faith-and-Hope@utopia@oceangirl@TAB@Shaz51@PeppiPatty

I know there are more people I could tag but maybe I will think them up as I go along - actually I already have

I think I need my own thread - mostly my problem is chronic pain syndrome - I damaged my spine with the sporting excesses of my youth - a long time ago now - and I managed to rearrange it when I fell of my pushbike in a wind storm nearly 22 years ago and that seems a long time ago now but there is nothing they can do except treat the pain - and I do have Section 8 medication and I see a pain specialist

And the pain has been worse lately and wears me down and I get fed up and very tired -

I have issues with my mother as well - and although she died 2 years ago I still have bad times now and again - she was abusive and as well as I know myself and her this can get to me at times - and this is another reason I opened my own thread

Then there is TS - my Toxic Sister - she was under my skin for a while but not at the moment

So yesterday I felt so bad when I went to see the doctor about my back pain - and my pain specialist has cut my medication back several times over the last few years and she has gone too far - and I started to tell my doctor - yes - I cope with the pain better since my mother died - but it's driving me crackers atm and so are the memories of my mother

So that's it for now - I have had trouble opening this thread for some reason but now I have - I will run my own story - I would like to think I don't need to but yes - I do

You are all such wonderful supportive people - you are my soft place to land - that is so true

And anyone I have missed I will tag as I go along

Lots of hugs everyone

Dec

5211 replies

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In response to: Life can be a Pain

Re: Life can be a Pain

Thankyou @Zoe7

That is a very insightful post and I thank you. I do have my boundaries and maintain them - my life has been better because of this and it is not easy.

I doubt it would have the value it does if it was easy. It has been the loss, trauma and pain in my life that has enabled my life,

my daughter has sent mr a Christmas Card - it took a week to get here - we have been texting this morning and I have been invited for Christmas. I was sure that would be the case,

Thanks for the kind thought about my aunt - it must be unpleasant for her and lonely too. My uncle has dementia - I can't imagine what will happen to him when she passes. I can't think about that,

My cousins are overseas - still Australian citizens but ex-pats - they have families overseas and their employment

Eventually we will get used to living with COVID - until then life will be unpredictable and challenging

I am sending my love Zoe - and thank you for you support

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Zoe7 @Shaz51 @BlueBay @Emelia8 @Anastasia

Good morning my good friends - I went to sleep around 7.30pm and woke up at 5.00am - best sleep for ages - I needed that

I have been eating an almost normal diet - chicken, red meat and vegetables, fruit salad (canned) and yoghurt. I needed that too

I have an appointment for a health check today - I hardly need that right now and I still have laryngitis so I don't feel like talking to the nurse about my weight and what I eat and remembering sentences etc - but I want to see my doctor. I know the clinic will be flat out busy this morning and maybe I will have to go through the rigamarole to see him - drat - but then - I can claim off with my laryngitis - it's getting better.

I have been having assisted showers - on Monday I undressed myself but still needed help to get my bra and shirt on over my shoulder - today - I do it alone. It easier if I sit and let my skin dry before I try these simple things to I will do it that way and probably manage. All my clothes are stretchy - and I already know there is not much an occupational therapist can tell me - after all - we all learn to manage some way or not - I have learned to manage.

Cutting up pumpkin now - that is a challenge - but I have learned how to get a decent - rather thin - slice off - my hand is unimpaired - just my shoulder.

I have told nurses about old ladies - some of us are very tough and I am one of them - I guess the time will come when I need to get some gadgets - that time is not yet

Anyway - this is my life and I will maintain my independence until the end even if I do need some assistance at times - I have a package with an agency to access this

I do appreciate the support from my friends here - and you are my on-line friends and I value all of you - even if I forget to tag -

Thanks you - one and all

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hello and hugs my second mum @Owlunar

That was a good night's sleep

How are you feeling now xx Yes having assisted help and still be independence

My mum wants to keep do things herself too but it is funny as she comes put with things that sometimes I don't do enough and then other times say that she can do it

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hi @Shaz51

Yes - I have had some good sleep over the last couple of nights - it feels good though I wake up very early - I read a lot

Your Mum - this is not easy for you and you have your own health issues - I would support your Mum to stay at home for as long as she could - my grandmother stayed with us until the last 3 months of her life - yes - they do strange things and that can seem funny but I know more - it's rough

I am supporting you on-line with your dialysis - it can't be easy - however - I am suprised you and Mr Shaz can't get onto the DSP - both of you have ill health and keep losing jobs through COVID and your health issues.

Keep plugging on with your requests for financial assistance - it's easy but I did it and it eventually worked and I was on the DSP - now the Aged Pension.

Like they say - It ain't easy being green - I'm here for you

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

hello my @Owlunar xoxo

once you go on the dialysis , you go straight onto DSP

but I am not there yet as the specialist is trying to postpone it as long as we can

i am now on injections for my diabetes now , so my next checkup is in february

mr shaz wants me to try DSP before i go on dialysis and he wants to be my carer

well i can not drive so he does that already

how is your pain today xoxo

mum is being very confusing today ,and voicing a lots of words , soo hard sometimes taking a big breath @Former-Member

we are having a holiday over christmas which will be nice

@Emelia8, @BlueBay , @Zoe7

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hey @Shaz51, wow sounds like you have quite a lot going on. Hope you're able to get some quiet moments to yourself. Do you feel like it'd help to talk about what's going on with your mum?

Here to listen

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Jynx

thank you

thinking mum has deteriaged a step in her dementia , last night i am sure she did not have a shower

then the she would not have one

having christmas lunch at my aunty this christmas and mum is not coming because of the steps ( mum is finding the steps too hard to go up and down now

today she announced that we will have christmas lunch here at home and she is eating less and then this morning she put water into the jug while the jug was boiling

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Oh I'm sorry @Shaz51 that is so hard. My maternal granddad had dementia before he passed and it was so, so hard on my mum, because it was so confusing and like, there's so much energy and effort required for that kind of care.

Will you have to make some alternative plans or like, have two xmas lunches or something?

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Sure we can have a afternoon tea at my mum on Christmas day if anyone wants to come xxx @Jynx

My other aunty and uncle can not go up the steps either , so they are coming to mum's

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Aww sounds really lovely @Shaz51

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