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Life can be a Pain

Life can be a Pain

Hi @BlueBay@Zoe7@Former-Member@Faith-and-Hope@utopia@oceangirl@TAB@Shaz51@PeppiPatty

I know there are more people I could tag but maybe I will think them up as I go along - actually I already have

I think I need my own thread - mostly my problem is chronic pain syndrome - I damaged my spine with the sporting excesses of my youth - a long time ago now - and I managed to rearrange it when I fell of my pushbike in a wind storm nearly 22 years ago and that seems a long time ago now but there is nothing they can do except treat the pain - and I do have Section 8 medication and I see a pain specialist

And the pain has been worse lately and wears me down and I get fed up and very tired -

I have issues with my mother as well - and although she died 2 years ago I still have bad times now and again - she was abusive and as well as I know myself and her this can get to me at times - and this is another reason I opened my own thread

Then there is TS - my Toxic Sister - she was under my skin for a while but not at the moment

So yesterday I felt so bad when I went to see the doctor about my back pain - and my pain specialist has cut my medication back several times over the last few years and she has gone too far - and I started to tell my doctor - yes - I cope with the pain better since my mother died - but it's driving me crackers atm and so are the memories of my mother

So that's it for now - I have had trouble opening this thread for some reason but now I have - I will run my own story - I would like to think I don't need to but yes - I do

You are all such wonderful supportive people - you are my soft place to land - that is so true

And anyone I have missed I will tag as I go along

Lots of hugs everyone

Dec

5211 replies

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In response to: Life can be a Pain

Re: Life can be a Pain

Hi @Shaz51

I know how you have a lot of pain because of your low kidney function and you have a lot of arthritis because of it. And you can't take suitable pain killers because of your kidney function.

It really seems harsh for me that the doctors don't think you are bad enough for a kidney transplant yet. I mean - I know kidneys are short on supply of course but still - how bad to you have to be? How much pain do you have to endure?

LIfe sure is hard for a lot of people - I really hear that

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Oh dear @Owlunar I am so sorry that you are in so much pain. Thinking of you as always and hoping for an improvement xox

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Thanks @Anastasia

I am going from day to day hoping I can get through to the end of next week without another visit to hospital for a few days stay that I would not enjoy. I guess that will keep me at home because I prefer my independence and a slight increase in my special medication helps a lot

We have had chilly, damp weather in Melbourne and today is fine and mild and I feel more comfortable - my daughter is finding the cold weather hard to deal with too - she has orthopaedic issues too - screws in her sacro-illiac joints. It's taking a long time for her to recover from the operation last November

I hope things are okay with you and your son - I know this is an area of life that is stressful and can change dramatically - can anyone really understand? Well - perhaps understand. But can we really know how it is for you? Yes - I do understand but I don't know

Actually - mental illness and chronic pain have this in common - we can't really explain how it is to anyone even if they are on the same page. With pain they ask us where our pain is on a 1 - 10 scale yet my pain specialist told me that they can't know how much pain I am in unless I tell them - even then - I told them it was excruciating and they didn't really catch on. I guess that's how things are between you and your son and I do know about that

All the best - I care a lot

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Sorry to hear you are in a lot of pain my second mum @Owlunar ❤❤

Thinking of you and your daughter xxx

I have my blood tests next week to see how everything is going

I told the medical center that I do not want to see the doctor I saw last time , he know nothing about kidney disease, said it is all arthritis and he pressed where I was aching and have been in pain since

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Owlunar

In response to: Life can be a Pain

Re: Life can be a Pain

Hi

@Anastasia @greenpea @Emelia8 @Zoe7 @BlueBay @Shaz51 @Appleblossom @outlander

Tuesday afternoon

I haven't been writing anything lately - I am having another shoulder ablation and a new treatment - a fluid replacement injection into my shoulder - on Friday. Next week it will be more facet joint injections

So with an unignorable amount of pain in my back and shoulder I have been doing only the most important of tasks and pacing myself so most days I am doing bits and pieces all day long. There are better ways to live

If I let it - it could get me down but I have had worse things in my life. This is just another hurdle - I will get past it. I have been reading some of the messages here - people are not having an easy time - whether we are all over the COVID hassles - lock-downs - bad news - people trying to get home to Australia after all this time. Tough times yes - I would assume most people are over it

I don't have much news - I will be staying at my daughter's place again on Friday after my shoulder issues - I don't need to after the facet joint injections because I don't get sedated for them. And there is so much to deal with organising two different day procedures in two different hospitals - alll the info they want - surely they already have all of that info from my previous admissions in the last year or so

Still - life goes on - I am glad I live alone with all of this - if I want to stay in my dressing gown all day I do

All the best my good friends - take care of yourselves - I hope to be a regular contributer after all of these issues are attended to

Dec

It all depends on which way I look at it all

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Owlunar 🌷🌻🌺🙏💞

In response to: Re: Life can be a Pain

Re: Life can be a Pain

sending you lots of hugs my @Owlunar

In response to: Re: Life can be a Pain

Re: Life can be a Pain

wishing you all the very best @Owlunar

take care, thinking of you xxxooo

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Owlunar 💐🌹🙏💕

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