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Something missing from the forums

Something missing from the forums

Hi

Just joined.

There's no obvious topic where carers can share tips, strategies and ask questions of each other about caring for loved ones who have schizophrenia.

Apart from the 'looking after ourselves' aspect, Carers spend most great deal of time trying to gather information about the illness, workiing on day to day and long term strategies etc.

Most forums don't only have a fixed set of topics but rather let users start new topics. This helps forums evolve and improve. In the present case, I would just start a new topic called "Sharing strategies" ("Caring and Sharing?") or similar, but I can't on your forums (at least as far as I can see).

10 replies

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In response to: Something missing from the forums

Re: Something missing from the forums

Hi @peter_here

Within the major topics, you can start a new discussion. There is a topic on Carer Hints in the Looking after Ourselves section, but it is not specific to those caring for someone with schizophrenia.

You can also start one under "Our stories". There is flexibility. it might be good if tips and hints were all in one place , but an issue with schizophrenia is also the whole social context, so in that sense reading the whole narrative might be more useful.

Take care

In response to: Re: Something missing from the forums

Re: Something missing from the forums

Hi there, @peter_here

Bubbly here, one of the moderatos on the forums. I'd just like to say, welcome to the forums! I hope you find this to be a safe and supportive environment to share what is going on for you at the moment.

You may like to check out this thread here where you can introduce yourself and get to know other carers on the forum.

I look forward to reading more of your posts and discussions around sharing strategies for carers. I think this is a brilliant idea and lots of forum members will get lots out of this. Thanks @Appleblossom for sharing how to go about starting discussions.

You might also like to check out these discussion threads here, here and here reagrding caring for a loved one with schizophrenia.

See you around on the forums!

Bubbly

In response to: Something missing from the forums

Re: Something missing from the forums

hello @peter_here @Appleblossom

welcome to this site where all users are carers under the umbrella of Carers Forum and people who have a mental disorder under the umbrella of Lived Experience.

As appleblossom mentioned you will find reference under many of the different categories and also within the different threads posted by contributors here.

When I first came on here I was very unwell, my mind a chaotic mess and I was surviving on auto-pilot.

I hate computers, use them only when working or as needed privately. I have a shocking sense of direction also in the real world. So for my trying to find my way around this site as well as comprehend how to use it was similar to stepping into a quagmire.

Eventually I worked out that under the title Carers Forum before you click on any of the categories below; there is a coloured box marked "new discussion" click on there and follow the instructions. Try to think of a title that can condense the overview of your article.

When you are ready travel through the different categories, read some of the threads. Then visit the other side. I call them both "the far side" even though they are both equally important. If you want to respond to someone and their message is not too long, you can click on quote which will then quote the message you are responding to. I found this ages after feeling distressed that my responses made no sense as often they did not follow on. One more hint. If you type @ when responding a drop box opens up with the user names who have written or responded to that particular message. By typing @ and the user name those people receive an email advising them that there has been a response to that particular message. That is a great way of keeping in contact with people who are following particular discussions.

Sorry about the length. I am known for writing story books. I just know how bewildering it was for me when I started.

I will be very interested to follow your post and responses. I have an adult son, recently diagnosed with schizophrenia, who does not accept his illness, he is now on no medication and has left the state.He has created a shell around himself making it impossible to contact him. He occasionally has contacted us when in need of money. Last time over 3 weeks ago.

It is wonderful that you are still asking questions about his medical diagnosis. Keep asking. Keep on researching. Your loved one is still there, perhaps blurred and unrecognisable at times by his symptoms.

He or she still has feelings and emotions.

stay safe

In response to: Something missing from the forums

Re: Something missing from the forums

Hi @peter_here you could start a discussion in "Something's not right", title "Caring for loved ones who have schizophrenia - strategies and questions". It would be helpful to collect information (and links to other posts) under one heading. "Day to day and long term strategies" is a great subtopic.

In response to: Re: Something missing from the forums

Re: Something missing from the forums

brilliant suggestion

In response to: Something missing from the forums

Re: Something missing from the forums

I would love to hear and share suggestions, Most places where you can get help are only open when Im At work, I've only just heard about Sane 4 years into mental health issues, and I like to hear real stories from real people. So thanks for suggesting this. I'm still learning how to navigate the forum to 😂 I'm interested

In response to: Something missing from the forums

Re: Something missing from the forums

I would love to hear and share suggestions, Most places where you can get help are only open when Im At work, I've only just heard about Sane 4 years into mental health issues, and I like to hear real stories from real people. So thanks for suggesting this. I'm still learning how to navigate the forum to 😂 I'm interested

In response to: Something missing from the forums

Re: Something missing from the forums

Thanks

In response to: Something missing from the forums

Re: Something missing from the forums

@peter_here
Is it your partner, family member or child you care for?
Darcy

In response to: Re: Something missing from the forums

Re: Something missing from the forums

I definitely agree..I would love to read some stories and the major topics. I say that I can learn and gain knowledge of this forum.

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