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ECT Therapy for Wife with BPD and depression - feeling anxious

ECT Therapy for Wife with BPD and depression - feeling anxious

Hi all,

I am a new member looking to hear anyones experience with ECT therapy

My wife who has a diagnosis of BPD and major depression is having a particularly difficult time at the moment and with changes in meds having limited success at this time is looking at having ECT Therapy in the very near future.

This has left me feeling anxious about the potential risks. As I want to support my wife in the best way possible I am trying hard to work through some of my issues and anxieties and was wondering if anyone was willing to share their experience with ECT, good and bad, and how you got through.

I know everyones experience will be different but particually to know how much it helped and if you think it was worth it?

More importantly, from your point of view relating to any support person, was there anything that was particularly helpful/ unhelpful that you appreciated or wished they could have done better.

I want more anything to be able to support my wife at the moment and for her to be confident that she has my full support. I do not want to inadvertently do or say anything that is unhelpful even if it is with the best intentions.

Also I don't want her to miss out on any treatment that could potentially be helpful due to unreasonable anxieties on my behalf.

Thank you in advance for any feedback.

40 replies

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In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @OverTheEdge, @Ali585, @BlueBay, @Fancy_Pants, @Surviving85

Thank you all for your replies and advice 🙂

Just as an update, my wife came home on Tuesday after 2 weeks in hospital.
So far the idea of ECT has been put on hold indefinitely 🙂 - so happy about that-
It would seem a change in meds and some rest has made a significant difference.

I am concerned that she has come home far too early but just being away from home was starting to cause anxiety in its self, and so for everything has gone smoothly so am trusting it will continue to be so.

Thank you again so much, being on this forum has been so helpful through a difficult time .

In response to: Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @Determined

You are most welcomed. Thanks for the update - so positive. I did feel by the information you gave in your post, that rest and the right meds were best for your wife's situation. I hope she goes well at home now, but don't worry too much as if it does become evident that she was released a bit early, she always has the option of going back in for another rest. In another few weeks the medications will begin to work to full effect so she may improve even more! It's just important that no additional stress is placed on her for now.

Glad this forum was of assistance to you through this difficult time. If you need us again we are always here for you. Better days are ahead for you and your family 😀

In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @Determined, <br><br>How are you and your wife travelling now? I've just found this site and thought I might share my experience with you thus far.<br><br>I suffered from a first episode psychosis 2 years ago, which resulted in a 5 month hospital stay. My doctors tried many drugs which didn't work and I was recommended ECT. To me and my parents, who were my carers as I have not had any lasting relationships and my sibling was studying overseas, this was a very frightening concept. In our minds, at the time this was my very unwell mind, ECT was permanently portrayed as an unsuccessful attempt at regaining sanity by Sylvia Plath's work The Bell Jar. So my family and I pushed against it, until we were at the last resort option and nothing was working. I signed the papers as an involuntary patient and underwent a handful of sessions. It worked. <br><br>I suffered fleeting memory loss -- only in relation to my time in the hospital. Mind you, I was on a lot of medication anyway and some spells of shaking which occurred when I was extremely anxious. Now, my condition is BPD and I have slowly been decreasing my meds. As a result of my medication, I gained weight. As a result of my interest in fitness, I was then able to lose that weight. <br><br>Now, thinking back, I would urge patients and carers to listen to their doctors.<br><br>As to helping through the process, hospital stays are quite devoid of a creative atmosphere and it was extremely difficult for me to read or listen to music with lyrics or digest scary media whilst recovering and I wished that I had my Walkmen (my hospital didn't allow mobiles/devices with internet connectivity) with jazz or classical music, a yoga mat (the floor of my hospital was hard), and some national geographic DVDs to play in the communal media room (if available). Of course, I was unable to voice this at the time and simply asked my parents to bring me food. Please be very careful not to bring anything dangerous or too easily breakable or expensive. I've lost so many items and clothing by either accidentally giving it away to other patients or destroying it. <br><br>Please take this with a pinch of sugar as my case was quite extreme since I had undiagnosed BPD &amp; a psychotic episode which led me to ECT and I can attest to its success.<br><br>All the best,<br>Glorianna

In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

@Determined ^ sorry, just to clarify I thought BPD was bi-polar disorder not borderline personality disorder. Are we talking about ECT as electro-convulsive therapy? Sorry again about my confusion!!

In response to: Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @Glorianna

Thank you for your response, it has helped me immensely to hear others experiences.
My wife is travelling a lot better since my first post here. She had a short stay in hospital just to get away and adjust some medications. I believe that the primary issue (trigger) at the time for her 'melt down' was environmental and that a change in medication mearly complicated the issue. Thankfully just having a respite stay in the hospital to sort out the medication and focus on strategies for wellness was enough and at this time we have been able to avoid the ECT. We still have a lot of work to do and a lot changes to make at home but things are looking positive.

Just to conform it is actually Borderline Personality Disorder that my wife has not Bi-polar and yes I was referring to electro convulsive therapy.

Thankfully because she was in a private hospital unit with her own room she was able to have her smart phone and a few home items to help her feel less isolated.

Thanks again for your reply 🙂

In response to: Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hello Determined

I am also facing ect as the only option left, If you ask psychiatrists they all say it has a high success rate, but this is not documented in Australia, there is no way we can look at statistics to help us make a decision, for example I have a very much treatment resistant depression and have read that this can make ect less likely to work, the industry needs to start gathering information on success rates, long and short term complications, relapse requiring more ect, my psychiatrist tells me she has a patient that has ect every month, the thought of that worries me, in Australia we give ect about twice as much as some other countries like the uk, I found the uk has good information through their ectas project, in Australia we give 27000 ect session per year just in medicare statistics, it is probably more when private hospitals are included, My family are all nurses and they do not want me to have ect as they have nursed patients that have had complications from it, I am learning better coping strategies that seem to be having good effect, I am hoping to hold out until a new medication comes out, it may be 2 or 3 years away but is showing good results.

In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @getbetter
Thank you for your contribution to this discussion.
I feel for you at the moment as I underatand how difficult a decision it is.
My wife was less concerned as she was just desperate to just try anything. Thankfully for us (my wife) a respite stay in hospital and a change in medication was sufficient to get her through the rough patch. Unfortunately ECT is not totally discounted for us yet but at least not necessary in the short term plan. I am hoping with the right support and therapy we can avoid it alltogether as I am concerned with the risk when there are other options available (for our current situation).
I really trust things work out for you.
D

In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Don’t do it. I did and am suffering severe cognitive decline. I can’t find my head. Lost my job. Again, DONT DO IT. I regret it

In response to: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

It’s the same as having a lobotomy . I know I had ECT and it destroyed my life

In response to: Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Re: ECT Therapy for Wife with BPD and depression - feeling anxious

Hi @Klynne welcome to the forum and thank you for your feedback.

My wife ended up starting the ect treatment but stopped after only 3 (or it may have been 5 I really cant remember) due to negative effects.

I agree with your thoughts. I was not happy at the time and am still not happy however I now know of people who's lives were changed for the better so...

I hope you can find the support you need here

It has been invaluable for me. I spend most of my time on the carers side though.

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