I don't know how to help my son

Hello @CaringCarer

I wanted to stop by and welcome you to the forums. I'm really glad that you've found this space to talk about what you and your family are going through.

I find myself feeling frustrated just reading about the run around that you're facing when trying to find the right supports for your son, so I can only imagine how exhausting and disheartening it is having to go through this cycle first hand. I know that being in a regional area just makes accessing the right treatment that much more difficult too. I'm wondering if you might be open to giving SANE's support line a call on 1800 187 263? They can offer resources and help to explore some other support options that they may be aware of, as well as listening and providing you with some support as I hear that you certainly need it too.

I wish I had more to suggest, but I do want to let you know that the community is here for you. 💜

Hi @CaringCarer

I can relate to your story, as a single mum of two boys (24 &21) One with a mental health diagnosis (bipolar) and the oher a physical disability (CRPS & IIH) while living in a rural area.

It sounds to me like you're doing an incredible job under such challenging circumstances and it's no wonder you're feeling burnt out. Trying to support a loved one with complex mental health and neurological needs, especially in a remote area, is extremely demanding. It's so clear from what you've shared that you've fought tirelessly for your son, connecting him with services, managing crises and advocating for his care when systems fall short.

Burnout is completely understandable when you're balancing his needs with your own mental health and family responsibilities. Many parents in your position, (inclunding myself) feel the same way, like they're on an endless loop without the right support. It's heartbreaking when practical help doesn't seem to be available or accessible despite your best efforts.

It took four years of endless medical appointments and specialists to diagnosis my son's rare physical disibility, so frustrating and exhausting as a parent and carer.

Even though you might feel isolated in this, know that there are others who understand and share this experience. Small things, like connecting with parents who get it or getting support for yourself, can sometimes be a lifeline. Remember, taking time to look after yourself is an important and essential part of being a carer.

Just the act of reaching out here for support, shows your strength and your commitment to your son and family.

For me, I received help through Carer Gateway and highly recommend their services.

https://www.carergateway.gov.au/

You're doing a great job, just don't forget to look after yourself, even finding short moments of rest for yourself, can make the load seem lighter.

Kindly Alisse

Hey @CaringCarer just a lil tip, if you want other members to be notified that you've responded, you can tag them - use the @ symbol and a drop down will appear, and you can choose their name. If their name isn't there, you can type it out and it should then appear for you to select, then it will show up in blue, like this: @Alisse @Ru-bee

😊