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One Day at a time here

One Day at a time here

hello everyone 😎

Was not sure where to write this

so, I have started a new thread

thank you @Oaktree , @Ru-bee for thinking of me today 😍

my results from the doctor was not really good

  • my Kidney function have decreased to 17%
  • my Liver and diabetes levels are up
  • I have Osteoporosis which i will need medication as my bone density has decreased because of the kidney disease
  • they believe that the Liver function is up because of the kidney disease
  • Kidney disease affects every part of your body
  • scan also shows the tinny of my kidney

1347 replies

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In response to: One Day at a time here

Re: One Day at a time here

Petrol price will affect everyone and everything I guess @Shaz51 . Hope you don't have shortages as well like some towns in WA.

I use public transport or taxis and most taxis seem to be electric now.

I had pasta with tuna and veggies/tomatoes tonight. I'll go for a walk now. It's still quite warm.

In response to: Re: One Day at a time here

Re: One Day at a time here

Hello @DownMoreThanUp 😊

I think if he has a good sleep through the night it would help a lot @Dimity

We had steakette and mashed potatoes and vegetables for dinner

In response to: Re: One Day at a time here

Re: One Day at a time here

@Dimity @Shaz51 @Till23 @AlwaysMyself @Jynx

A bit of down day for me today but also emotionally a lot quieter. i did get 7 hours sleep last night, over 3 sleeps, so that was good. Hopefully that keeps improving. Have been doing meditations exercises dealing with anger, anxiety and insomnia they have been helpful but they are no immediate help unfortunately. For despite me having more sleep i have been rather tired and drained today and haven't been very active apart of doing these meditations exercises as well as some quality time chatting with our oldest son who popped past to say hi.

It is about mastering my emotional reality instead of being mastered by it. That is going to take a bit of unlearning as well as learning to accomplish.

i have learned to respect this man's understanding of trauma victims and how best deal with them.

https://www.youtube.com/watch?v=xYTTrN6WR3o

In response to: One Day at a time here

Re: One Day at a time here

Hello @Shaz51,

I apologise for my delay in responding to your message about your hearing appointment. How are you feeling about the idea of exploring NDIS?

And would you feel okay about another hearing aid?

Please let me know when your other test results come back. 🫶

In response to: Re: One Day at a time here

Re: One Day at a time here

Got the NDIS forms rolling I have to get the doctor information @AuntGlow

Give it a try , 65 years old is the cut out point

And I am on the DSP and the NDSS now

Another hearing aid is find until my hearing totally decreases

Could not get doctors appointment for another 2 weeks , crazy

In response to: Re: One Day at a time here

Re: One Day at a time here


@Shaz51 wrote:

Got the NDIS forms rolling I have to get the doctor information @AuntGlow

Give it a try , 65 years old is the cut out point

And I am on the DSP and the NDSS now

Another hearing aid is find until my hearing totally decreases

Could not get doctors appointment for another 2 weeks , crazy


I really hope you get approval for NDIS, it will be so, so helpful and you absolutely deserve all the support you can get right now. @Shaz51 💛

I am sorry you couldn't get another appointment for 2 weeks... waitlists are so long at the moment, aren't they? 😣

What support might you need in the interim? 🫶

In response to: One Day at a time here

Re: One Day at a time here

Morning @Shaz51, I’ve been thinking of you! How have you been?

I’d like to thank-you (as always) for all the tags in your posts on coffee chats etc ☀️, just really sorry I haven’t been able to keep up. You are amazing here, I don’t know how you do it ☺️, the effort you put in on the forum definitely doesn’t go unnoticed so thank-you!

Hows the process of the cochlear implants going? Are you vibing with your kidney buddy, how’s all the genetic testing stuff going? How’s your husband traveling? How’s your grand kids- having lots of fun with them? Lots to catchup on no pressure to respond or answer anything you don’t want 🙏. Take care shaz always lovely to connect my friend 🌼🪻🌸🌻

In response to: Re: One Day at a time here

Re: One Day at a time here

Thank you @Chasingsunsets

No cochlear implants yet as my hearing is very bad but not bad enough for implants yet

Finally got. A doctors appointment next Thursday to get all the results of the scans and xrays and blood tests

Kidney buddy is nice , she has cysts growing on her organs , she has had her Kidney and liver transplants so far

We have only one grandson close to us so it was nice spending time with them after shopping on Tuesday

I am applying for the NDIS at the moment as well

Hubby is still having trouble with sleeping every night,

Finally got the heart specialist on board now too

Happy birthday Indi 🎂 where will we have the party @Chasingsunsets

In response to: Re: One Day at a time here

Re: One Day at a time here

@Shaz51 I see re cochlear implants, so just a wait and see and monitoring your hearing for now?

I am glad you got the doctors appointment, how are you feeling about it all?

I am glad to hear you feel like you are connecting with your kidney buddy and that’s she’s nice 😊, wow she’s had a kidney and liver transplant what an amazing lady she’s been through so much too.

Oh you spent time with your grandson on Tuesday that sounds awesome, what did you get up to with him?


Applying for all the NDIS stuff, how’s that all going? I can imagine it would be very stressful and a bit complex?

sorry your husband is having trouble sleeping, how’s your sleep going?

Glad you got the heart specialist on board too, is he knew or been in the background for a while?

Oohh yesss it’s Indi’s birthday big 10!! 🐶 thankyou!! I’m happy to post it on highlights or happy for it to go anywhere ☺️, I am a bit snowed under with all posts I would love to respond to esp on highlights page feeling terrible but I really hope there will be a time I can catchup! ☀️

In response to: Re: One Day at a time here

Re: One Day at a time here

Stay safe @Shaz51 and Mr shaz. Hope the wild weather passes quickly.

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