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Anyone started with the NDIS?

Anyone started with the NDIS?

Tells my story from initial application (Feb '17) to acceptance by NDIS (July '18) and the process of putting things in place and progress, improvements, managing and difficulties since then. Now Jan '21.

Original post : I've recently moved and will need to get into the NDIS in my new location. Wondering if anyone in the forums has successfully done this? Any advice would be welcome. Feeling swamped by their website.

EDIT : I was finally accepted to the NDIS and am now 3/4 through my 2nd plan. With only a small reduction from the first year. And this plan is for 2 years so I don't have to jump through all the hoops with a review this time next year. To all others on this path I say ........

IT'S REALLY WORTH PERSEVERING!!!

Hoping this thread helps all who come here.

@Appleblossom @Queenie @saturnzoon @CheerBear @Mazarita @Bunniekins

Spread the word!

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In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Thinking of you and sending clarity and perseverence for today @Queenie . I'll talk more about my meeting later probably. Have brain fog this morning after all the adrenalin of the last few days. Hope it goes really well for you. I won't know the outcome of mine for a month apparently.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Well @eth I’m back from my meeting and it was awful! I’m being forced into work and they are going to recommend to Centrelink that I’m removed from dsp onto Newstart and have to look for work. I’m freaking out! I know I won’t survive this 😭😟

In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi there darlin, sounds like nothing is really lining up for you at the moment. 😞 If I read it correctly you havent had either psychiatric nor support coordinator support for a while? And that your support coordinator isn't really working for you.... I would try and delay the meeting time and get another support coordinator who is there for you, nothing worse than having someone who is just there in body but not spirit, as they can sometimes hurt your situation. You sound like you, yourself are well prepared, perhaps just lacking some self confidence, which is easy to say, and difficult to find, eh! All I can say, is that if you don't feel that your support people are there with you, and you want to put it off for a week to get more organised then see if you can, otherwise, run with what you have and have a to-do-list in front of you and tick each off as they are noted in the review. Make the LAC or person performing the review read back the points that matter the most to you, so you can be sure that they are listening to you and actually writing down what you are saying. This might help too. Wish I could help, I am having my own situation and my lack of self confidence undermines myself, something I am working on. Good luck. @eth

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Oh @Queenie! That's horrible! I'm so sorry and so angry for you 🙁 I have no idea how that could come out of a meeting like this. Did they talk with you about why they're putting in those recommendations? Far out 🙁

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Thanks @PurpleKathy I got through it. Won't know the outcome for a month tho'. The waiting will be hard. There is lots I could say but I'm just not up to it tonight. Will post here at length when I come out of the funk I'm in. Hope your situation resolves in your favour.

@Queenie that sounds outrageous. I was under the impression that NDIS had no communication with C'link except to confirm details at the beginning of your application. I really feel for you. So sorry you have to deal with this. Seriously unfair. Lots of swear words on your behalf. I can't think of words that would help at the moment but want you to know I'm here to support you. You have the right to appeal with both NDIS and C'link if you disagree with a decision they make.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Oh @CheerBear @and @eth , I’m really freaked out because on Newstart I can no longer afford health insurance so you can say goodbye to my hospital stays and psychiatrist. I also won’t be able to afford petrol to get to my course to finish placement. I feel very unwell right now but what can I do? He made the referral to a DES provider right in front of me.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Oh @Queenie I'm so sorry. That would be a monstrous stress and shock. Could the referral be something he was doing as an extra support rather than instead of NDIS/DSP support? (I'm probably being ridiculously optimistic here).

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I don’t think so @CheerBear. He even asked for confirmation of my crn. He went on to say if there were no places with a local disability employment service provider, that I would be placed with a regular employment agency.

My anxiety is through the roof and it’s fuelling voices.

So much for my doctor telling me to remain in a low stress environment! I’m bawling my eyes out.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

@Queenie

Just read your post on worry thread.

The only thing I know is that the LAC opinion needs to be signed off higher up and there can be grounds for appeal.

Not sure how good emplyment networks are at dealing with levels of disability.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I really hope I can appeal @Appleblossom . I only went in for the same plan with support coordination and an OT/dietician thrown in seeing as I’ve developed metabolic syndrome due to meds. He said the meds caused the illness not my disability so the answer was a big fat no. I was also disallowed support coordination. Overall it was a terrible experience.

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