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Anyone started with the NDIS?

Anyone started with the NDIS?

Tells my story from initial application (Feb '17) to acceptance by NDIS (July '18) and the process of putting things in place and progress, improvements, managing and difficulties since then. Now Jan '21.

Original post : I've recently moved and will need to get into the NDIS in my new location. Wondering if anyone in the forums has successfully done this? Any advice would be welcome. Feeling swamped by their website.

EDIT : I was finally accepted to the NDIS and am now 3/4 through my 2nd plan. With only a small reduction from the first year. And this plan is for 2 years so I don't have to jump through all the hoops with a review this time next year. To all others on this path I say ........

IT'S REALLY WORTH PERSEVERING!!!

Hoping this thread helps all who come here.

@Appleblossom @Queenie @saturnzoon @CheerBear @Mazarita @Bunniekins

Spread the word!

927 replies

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In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi @eth and anyone who might be reading along with this (very helpful) thread.

Today I took a call from the NDIA to book in my planning meeting. A little while ago I was accepted into the NDIS then was hit with the frustration of being told it would be 6-9 months until a planning meeting. Last week I called to check how it was going and was told the time had been extended to up to 12 months wait for a meeting. I don't know what happened but I now have a meeting booked in for about 2 weeks from now.

I feel a little overwhelmed as I haven't done any of the preparation I would have liked to yet because it looked like I had a lot of time until it was here. It's also a pretty bonkers time (when is it not though) and I don't know if I am really up to dealing with NDIS stuff right now. Hoping it will ll be worth it though. I have a bit of work to do I think 😏

I'm going to go looking for the planning meeting questions you posted a while ago eth. Wondering if you know whether they're still the same? Also planning on reading through this thread again as I know there is some great info in it.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi @CheerBear good on you for being proactive with NDIS. 2 things spring to mind. 1. you can ask for a different date postponing your planning meeting if you're not ready for it and 2. lots of people on fb recommend having a face to face meeting rather than doing it over the phone. I did and it worked out really well. I had a (free) disability advocate helping too (google them, they're in every state). If you've got a planning meeting it sounds like they have accepted you already. The questions at my planning meeting in early July were almost identical to the ones I posted here. The focus was entirely on daily function and I stress you need to present to them what your worst days are like.

The primary focus is proving permanence (lifelong) of your 'psychosocial' disability (mental health diagnosis) even if it is episodic, and going into detail of the way it effects your function in the five areas that are on the initial application form (which I hope you kept a copy of). There has to be significant functional impairment in at least one or two of those areas.

To prove permanence my psychologist had to report something like .... even with ongoing therapy it would only 'ameliorate' my symptoms and help me manage better daily, that it would not be a cure as such.

Truly hoping that there is plenty that helps you in this thread and wishing you well for this stage of the process.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

For anyone preparing for a planning meeting or starting their application I found the page numbers on this thread of really helpful suggestions that were spot on for me

p56 Mapping My World booklet, Endeavor Foundation

p57 List of questions you will be asked at the planning meeting

@CheerBear I realized you already saw them.

@JasJac @Queenie @Tight-Control

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I've only had to go on the myGov website once, to activate my plan. NDIS sends you an access code when you get your plan. My Plan Manager helped me and since then she takes care of all invoices, getting the funds from NDIS and paying them. If you ask to be plan managed and it is approved it will be funded in your plan. It gives you the most freedom about what supports you use (compared to Agency managed where NDIS does it all and you have to use NDIS registered providers), while at the same time removing the daunting and stressful tasks of self-managing. There is information about these 3 choices re managing your plan on their website.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi @CheerBear did you get a good plan with enough funds to do what you need and want to do over the next 12 months? How are you going with putting supports in place?

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hey @eth. I received significant funding in my plan (I mentioned an approx amount in another thread when it came through) which was enough to kind of shock me a bit and I'm really thankful for.

I am self-managing but have been funded for some support coordination to get me started so very recently I met with a support coordinator. We realised that a big chunk of my funding (around half I think) had been allocated to support I didn't ask for, don't need and won't use which would have been much better placed in a different area which I was given no funding for (as far as I can remember as I was a bit batty at the time) despite asking for and giving evidence of needing 😖 The support coordinator was fabulous though and seemed pretty confident that with a plan review we should hopefully be able to switch it over and make it more helpful for me.

While I wait for that I can still use some of my plan including funding for my psych which was really important to me and some social stuff but that one will need to wait until the kids go back to school. I have enough to see psych more than once a fortnight but will use it fortnightly unless I need. I have no idea how to go about doing it all though and with the Christmas break there's a bit of a gap as far as support to do that, so I'll either get another mental health care plan to get me through (funny considering how much is there in the ndis plan to use if I could just figure out how to use it!) or I will wait until someone can help me.

I am yet to see any benefit from the ndis at all but am slowly getting there maybe (not without some hiccups and bumps along the way!).

Long story sorry! Thanks for asking though 🙂

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hey @CheerBear congratulations for your overall result - you deserve it.

As far as I know (from something that happened with my plan) funds that are in 'core supports' (ie not capacity building or assistive technology) can be moved between categories within core. Maybe that will help you.

I hope self-managing works well for you. I know it would be beyond my capabilities. You might want to look at HireUp for support workers. They are all independent. It's a brilliant set up and has plenty of people available over the festive season.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Thanks @eth 🙂 We had a look at whether it could be transferred and I don't think it can. I think it needs to be changed from core to capacity perhaps (I have no idea really as it is a jumble of words at the moment - I was in a kind of lala not listening land at the meeting 😏)

I have my plan in my hands and can see that it isn't half the funding as it can be switched between things like daily activities and social and community participation, but it is way more than I need in that area and not enough in another. The words "line items" is something I do remember from the meeting. It'll come back to me, or not, but I'll figure something out eventually.

My big worry with the ndis which is kind of where I sit at the moment with my plan, is that my needs fit somewhere between assistance and support with daily activities, and crisis support (area mental health services). I need community mental health outreach kind of support which I will no longer have, at least until I can get things sorted through my plan.

The self-managing is beyond me unless I have some support to learn and familiarise myself with it all, but once I do it a couple of times I should be right. Right now it is waaaaay overwhelming though!

Thanks for the suggestion about HireUp. When I next properly look into it all I'll try and remember to check it out.

Thanks again for all your support and encouragement with this eth. It's been so helpful to have you share your experiences and knowledge.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Maybe searching for mental health trained support workers might help you bridge that gap @CheerBear. Or your psychologist might help you put that kind of support in place.

Also I think if you have funding for a Coordinator of Supports part of their role is to help those self-managing to learn how. It's probably a capacity building line item that they'd charge for on top of getting their payment for CoS direct from NDIS. Dunno, just maybe.

It's such a steep learning curve isn't it... brave you!

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I think the problem is I am not really funded for that gap @eth, but that's what the support coordinator is looking in to. As you said the support coordinator is also able to help me learn how to self-manage but with the break and their holidays it will be a while away. There is someone taking over while they're on leave but I was so jumbled up on the day that I have little idea what they said about accessing that support, how to go about it, what to do or what is happening now. There's probably not much I can do until the kids start back at school now anyway. I'll be able to focus again on it then.

They did give me a list of crisis numbers to use in the meantime, which I kind of laughed to myself at (as bad as that sounds) as my struggle and frustration is in wanting support so I don't get to that stage. It makes way more sense to me to try and prevent the need for crisis intervention than to cross fingers and hope for the best while dishing out numbers of services that maybe/maybe-not might help, but it is what it is.

Before I get too far in to my over-it-all rant, I'll stop and say that hopefully it will all come together properly sometime soon, but until then I am thankful I have a great GP and a new mental health care plan to use starting soon 🙂
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