Newbie's Social Club - Come make some friends!

Hello @Onx , @Sub-H-Alien

How are you going today my friends 🧡

Hi @Shaz51

I'm OK but my chronic pain level is refusing to respond to suppression medication. Probably because I tried boosting my mood with a small gym effort yesterday.

How are you?

hello @Sub-H-Alien , sorry to hear you are in a lot of pain my friend , how are you going today

Hi @Shaz51

Thanks for your consideration.

Alas, right now, I'm in much more pain than my last post. Unfortunately I also wrote a post yesterday that got flagged as spam which really hurts. I'm already in pain, I come here for some sort of means of passing time. Whilst in that pain, I struggle to think straight enough to write, then that writing just gets flagged automatically as spam, and my note to the mods goes by without response.

Doubt I'll be hanging around here much, if at all, if this scenario represents the quality of the system.

How are you?

Ohhh so sorry about that @Sub-H-Alien

The peer support workers are on leave at the moment but they are coming back soon

will tag @tyme so she can read this when she comes back

meanwhile you can tag me anytime and there are other community guides like me to help @Oaktree , @Snowie ,

taking one day at a time here to my friend

my hearing aid is playing up big time and cant see anyone until january 2nd

Hi @Shaz51

Thank you for your understanding and consideration. I hugely appreciate the care your post has demonstrated.

I can imagine how frustrating it must be to have that hearing aid playing up. On the grounds that there's seemingly myriad shops popping up all over the place these days to provide hearing help. I can only imagine that is due to the continued evolution of microelectronics but it seems very strange. A possible fad like sleep apnoea stores were 10 years ago? Not a fad because the service they offer is not legit. A fad because the flood of stores will eventually merge into a less than a handful.

Meanwhile nigh on everyone seems to be getting around with hearing-aid-like 'earbuds'. So, yeah, I can really imagine how annoying it must be for you.

Over recent times, I've noticed an increase in places open on dec 25. Admittedly all hospitality based. They seem to be staffed by those who couldn't care less about a holiday that isn't embedded in their culture. If only this extended to other industries!

Thanks again for your post. As luck would have it, came through when I was really feeling the limits of this forum scenario - posting at length only to have it flagged as spam - were too hurtful for me.

Do you have anyone around who can tinker with your hearing aid to try and help?

@Sub-H-Alien , I will keep putting the hearing aid in the drybox every night until I can get to the city in January

yes my osteoporosis pains are hurting a lots , have to see a pain specialist in 2025 to find the right treatment as i have stag 4 kidney disease

Hi @Shaz51

Wow, that's intense! You're dealing with an awful lot there and yet you have some capacity, inclination to pop into these text boxes and whatnot and have compassion for others. That's incredible. The only person I communicate with - albeit over email - on a daily or greater basis, has had both his kidneys removed due to polycystic kidneys. He's doing home, overnight dialysis thrice a week. I've tried very hard to be supportive of this. So, I know a lot of details about his treatments. Don't quite understand all of it, but I can relate to some of the terminology. That said, (I wonder if this will be flagged inappropriately) the term 'fistula' has consistently been a difficult one to take seriously, LOL.

I strongly doubt there's a private chat option in these forums. If there is, I would be open to discussing your kidney situation a bit more, if that would be of interest and potentially helpful.

Having multiple diseases at once is cruel. Let alone major ones like osteoporosis and kidneys. I feel for you and will have to post photos of an experience I am still just about able to get, daily, that helps me through. It might give you a lift. I'll have to pop offline for a while, now, though.

In case I don't get to mention it, I do hope you can find some improvement in at least one of your conditions, ASAP.

FWIW, I can give some feedback about the medications I've tried. Not in any sort of responsibility context, of course (don't worry, mods!). Just feedback of my own experiences that may not be relevant to you. If that is possibly helpful. Or not.

of course (don't worry, mods!). --- 😂😂 I love that @Sub-H-Alien 😁

I have a thread called Chronic kidney disease & mental health

and Diabetes and mental health that you can click onto to xx

also mine is One Day at a time here

have you started a thread so i can write to you on