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Advocating for change

Self advocacy.

Self advocacy.

Hi all.

I'm in the psych ward at the moment. They are discharging me today.

However i have severe pneumonia and I'm really sick. Like really really sick.

I've spent my admission in bed with high fevers and high resp rates. Isolating in my has been hard. But I've been too sick to care and I've been just trying to breathe or sleep so being in my room has been fine. Most of the nurses have just been ignoring me too.

I don't know what to do. I feel too medically unwell to go home. How do I slef advocate to be moved to a medical ward instead of going home. How do I make them listen when I just can't talk. Or lack the motivation and energy to stand up for myself.

And tips would be great.

54 replies

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In response to: Self advocacy.

Re: Self advocacy.

I'm so tired. My pneumonia had spread to both lungs. They were saying I was nearly septic.

I'm waiting for the bed. And getting some good antibiotics. I feel awful barely slept.

In response to: Re: Self advocacy.

Re: Self advocacy.

oh my goodness @The-red-centaur. That is terrible. What an oversight on the part of the psych ward. I'm so pleased you are now in hospital for much needed treatment with your pneumonia. I hope you will be allright. I was meaning on checking in with you today. I had a friend with cancer that the psych hospital failed to act on so i know what goes on. Please try and settle yourself, you have been through a very traumatising situation. I am just glad you are in the right place now ❤️ You have been very ill. Sepsis is serious. I don't know how the staff in the psych ward could have been so dismissive and have overlooked your case if you were coughing and unable to speak etc. Anyway just look after yourself, you have been through A LOT! I will follow up with you tomorrow and @Jynx may even drop by again and say hello. Take it easy and allow your body to heal. You have the right doctors and nurses by your side looking after you now xxoo

In response to: Re: Self advocacy.

Re: Self advocacy.

@Former-Member

Thank you for the kind words

I had a really rough night, and today hasn't been much better. I'm still in the ED and will most likely be here into tomorrow.

I'm thankful my carers sent me in when they did.

In response to: Re: Self advocacy.

Re: Self advocacy.

And I'm sorry about your friend.

In response to: Re: Self advocacy.

Re: Self advocacy.

Thats good @The-red-centaur I was hoping for a appropriate outcome for you as you were really struggling to hold it together. I'm so pleased your carers stepped in and advocated for you. I'm aware of some things in respiratory. It seems people are coming down with pneumonia a lot these days particularly if you are elderly. I don't know how long they will keep you in there but you have some time and space to get the appropriate interventions and some measure of relief that you are finally in the right place. Thanks for asking about my friend. She is no longer with us. A beautiful soul. I wasn't a close friend of hers but she was salt of the earth and very well liked by others

In response to: Re: Self advocacy.

Re: Self advocacy.

@Former-Member I'm only 31. The drs said is unusual for someone my age to get this sick.

They are going to do a bunch of investigations.

In response to: Re: Self advocacy.

Re: Self advocacy.

Please take care @The-red-centaur . It sounds so hard at the moment. Rest up.

In response to: Re: Self advocacy.

Re: Self advocacy.

@tyme thank you.

I'll get there.

In response to: Re: Self advocacy.

Re: Self advocacy.

I'll be getting a medical bed in about an hour. Yay

In response to: Re: Self advocacy.

Re: Self advocacy.

I just arrived one the ward. What

A gruelling weekend. I'm exhausted.

I hope I can finally sleep

 also pigicorn is happy to be here too

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