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Friends, families and carers

D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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In response to: D.I.D....

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@Smc

Would it help you to speak to @Former-Member or the Sane support line/chat? There is also the suicide callback service (which I accessed when Mr Darcy attempted).

In response to: Re: D.I.D....

Re: D.I.D....

Thanks @Former-Member. I think we're doing OK.

I was talking with her about how she's lost touch with what's "normal". That a trip to the Emergency Ward, particularly with ambulances and police involved, is a crisis situation for most people. So for her new housemates, that equalled four crises in the space of a couple of weeks.

I don't think she can see that there's nothing "only" about an ambulance level emergency. I've only once been taken to hospital in an ambulance, and have only ever needed Emergency Ward treatment three times in my life.

Hassle is, our own concept of "normal" gets a bit skewed too. If one of our other "kids" was sent to Emergency, I'd at least be in regular contact with them via phone; if it looked serious, or if they wanted our support, we'd be traveling in to them if possible.

You can't do that when the "emergencies" are so frequent. We can't keep her safe; we probably wouldn't be helping by being there because it might escalate the sense of "medical crisis", and the attention that circles around such situations seems to be something she's got an unconscious psychological craving for. So our default is to check how she is, and if it's something easily "fixed", leave it at that.

We pretty much try to carry on with our normal plans as much as possible. So QED, we'll shortly be heading out to our town's carols evening. Going into a tailspin panic and dropping everything else would only make the situation worse by leaving us less functional.

We do know that, regardless, this is all wearing us down. But it's not a sudden shock crisis. Using a current analogy, it's like living with the knowledge that a bushfire is over the next hill, but it's been there for the past fortnight, and life has to go on... so you readjust your day to day routine, you monitor the situation in case it gets worse, but somehow, until/unless it gets worse, normal life has to keep happening.

She's like a constantly smouldering fire that's "contained", but not extinguished; when the wind blows the wrong way she flares up to "advice" or "watch and act" level... and every now and then, to "emergency warning". Getting the news that she had to leave the group home was the equivalent of "advice". It's now kind of "watch and act", but she's being professionally cared for, so hopefully there will be no grounds for progressing to "emergency warning".

In response to: Re: D.I.D....

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@Smc 🙏

In response to: Re: D.I.D....

Re: D.I.D....

Three more Emergency Ward presentations. Today being a serious SA- completely outside of the grey SH area. The doctor at Emergency is supportive of a psych unit admission once they're sure she's physically stabilised, but whether or not that happens is up to the Mental Health Team. If it doesn't happen, we'll be pushing for it. She is not safe at the moment.

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Oh @Smc 😥

Trust they can arrange that.

Feeling for you and family at the moment 🙏

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Re: D.I.D....

Thinking of you today @Smc

Trust things have improved in some way.

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How are things today @Smc?

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@Former-Member @Determined
She seems somewhat improved, hoping that is the case and continues. I was able to speak to her MHS caseworker this morning, and she followed her up today. The caseworker is actually pretty good... but she's limited by the rules she has to follow... by chronic understaffing... and she's not available after hours, which is when most of Older Daughter's incidents happen.
And we've got all Older Daughter's goods safely back to her place. And are very exhausted, so we're heading to bed.

In response to: D.I.D....

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@Smc thinking of you 💜

In response to: Re: D.I.D....

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@Smc

From what you are saying she is home?

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