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Friends, families and carers

D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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Much needed R&R, @Ali11.

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How are you going @Smc

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Tired @Former-Member... 5 am phone call from Older Daughter, she couldn't sleep due to nightmares. These middle of the night phonecalls are exhausting. The phone rings, there's an immediate adreniline rush reaction because I'm suddenly expecting an emergency, jumping out of bed to try to catch it before it rings out, and then regardless of whether it's actually an emergency or not, the heartbeat is doing double quick time, and the mind as well, so getting back to sleep isn't easy. Am trying to reinstate our old emphasis that calls after 9pm should be emergency only. Nightmares and sleeplessness are highly unpleasant, but are not an emergency.

Other news... her back abcess seems to be healing up OK.

Mum's gashed leg seems to be healing too, going by her phone report, but she also told me that a close family friend has been injured by a car backing in to her. Hoping she's OK. She's a determined and cheerful minded lady, but already had some health problems.

And a case worker from MHS referred us to a local area carer support lady, so we've scheduled a "get to know each other" cuppa for next Monday.

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Another ER visit last night. She rang us about it lunctime today. 😞

The dividing line between SH and SI gets really hazy sometimes. On one hand, the "intent" is there. On the other, she's planning her next craft project. ??

But regardless of where the line falls, last night was one of the ones that could have been much more dangerous. And it's a bit "out of pattern" too.

She's having nightmares, including one about her paternal grandmother passing. Ok... 3 out of her 4 grandparents are not in good health, all of them are getting older, but too often she's the one we're worried about losing. And it raises questions about how she'll cope when an inevitable old-age passage happens.

Me... my most disturbing dreams are the one second long ones where I think the phone has just started ringing. Only takes a moment longer to realise it's not, but "I'm awake now!".

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@Smc I think that line becomes more blurred when a person we love is involved.

Do you have a psychologist or counselor that can help you as you negotiate your way through this valley?

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@Former-Member, we see a psychologist regularly for "us". We've got a lot of support, but there's so little anyone can do to keep her safe. Really, she's the only one who can do so, and that means she both has to want to, and has to believe she can do so.

She made a second visit to the ER on the urging of a mental health worker (I think? I wasn't familiar with the name). No admission. Which I understand. The psychiatrist in charge is concerned that the short term "fix" of admitting her will do more harm in the long term. However, in the short term, all the options end up coming back to her mindset, which isn't in a great place right now. 😞 We went in to give her a lift home. Am hoping she's OK tonight.

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Thinking of you @Smc

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Wish there was more I could say. Trying to find something but just wanted to let you know you and family are in thoughts and prayers.

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Thanks @Determined. Not knowing what to say is OK. And we appreciate the thoughts. and the prayers even more so.

Younger Daughter desperately wanted to stay home from school today. She did get up, dressed, and left in time for the bus. If she'd stuck to her bed like a limpet, quite frankly, we couldn't have done anything about it. We gave her a big "family hug" and thanked her before she left.
Somehow normal routine things have to keep going in the middle of all of this "doesn't make sense" stuff. 😞 Each wave has way too much backwash, and we all get swept off balance by it.

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@Smc

I guess I really don't know what to say either.

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