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D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

@soul She's not much of a sporty type, and relaxation exercises seem to confuse her. I don't think she can get her mind into the right state to benefit from them. The most I've been able to get her to try has been controlled breathing, but I'm not sure if she's ever tried that without someone (me...) coaching her through it.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

She does go for walks, which seem to help a bit.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Glad that she has at least one thing that facilitates her state of mind. I found walking was very beneficial for me especially if there was something that was interesting or peaceful to look at. Hope to get back to walking somewhere besides the suburbs soon @Smc.

Does your daughter enjoy listening to music?

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Ummm... she used to listen to it a lot. I'm not sure how much she does now as she's not living with us. She likes playing her recorder, and doing craftwork.

Something I was enjoying on my recent visit up to my parents' house was going to the park across the road at dusk and lying on the round webbing swing. Similar to the one in this pic. I'd set it rocking, call up Hubby and younger daughter at home, and watch the stars and fruit bats come out while we talked. If I took a pillow across, I reckon I could have happily fallen asleep there. I need to do something similar at home, somehow. We get more mozzies here than they have there, so that makes it tricky. We do have a hammock begging to be used...

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Love those swings @Smc,

I feel more relaxed just with the image of rocking and watching the stars.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

I sit rocking in playground swings sometimes @Smc. It used to be an adult pastime too .... similar to swing seats on front porches.

In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

Oh @Smc ..... I am so sorry to hear this ..... and I am hearing this .....

I picked up your post earlier while I was out, but the company I was in, and time / privacy restrictions meant I couldn’t answer you in the moment .... and then the forums were down for maintenance for a little while.

Self-harm is common-ish on the Lived Experience side of the forums, for exactly the reason your daughter is resorting to it ..... and it’s so hard. We have compassion through understanding the function of it ..... but also compassion for the doctors involved, with the wish that they didn’t get burnt out too and could remain compassionate for all their patients. The self-harming ones are in no less need, but that can be forgotten, or the thought pushed aside.

I am still not convinced that there isn’t DID in my hubby’s situation, having looked further into inherited trauma articles ...... it is possible that my MIL or FIL have / had dissociation ecperiences, understanding the war-torn world they were raised in as young children and things they witnessed. It can also take decades for alters to begin to emerge, apparently, and from the material I have been looking up, perhaps the psychosomatic symptoms your daughter has are related to her alters and their perceived suffering ...... with the thought that it might be an inherited trauma condition for her ?

Is there trauma in the generation before yours ?

While this can only be speciation on my part, the objective is always problem solving ...... what has happened to these people, and what do they need to help them recover or stabilise ?

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

@Faith-and-Hope thanks...

My Mum has probable MI problems too, but undiagnosed because that was "back in the days" when seeing a psychologist got you instantly branded as a basket case. Her Mum died when she was a girl, at about the age you'd expect would trigger DID, and there were other family relationship problems too.

I'm more suspicious of Mum's problems being a form of Borderline Personality Disorder. Some of our daughter's behaviours do remind me (very unsettlingly) of Mum, despite us being careful to shield our kids from Mum's meltdowns when they were young. Daughter never really saw Mum in a bad state until she was maybe 10 or so years old? That was a nasty shock for her.

Daughter seems to have had a tendency to escalate situations even as a preschooler, and may have been dissociating from a very young age. While I was pregnant with her, we moved house, going from a place that had a very supportive and child friendly church community to your average city suburb where you barely got to know the next door neighbours unless you made an effort. I have no idea whether that stress could have affected in utero brain development and neurochemistry. It's a theory which is being explored in research circles, but dunno how you'd pin it down as being a factor. I do think that something predisposing DID may have been there from very early on.

In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

My grandmother get had an undiagnosed mi @Smc ...... some of the family had referred to her as schizophrenic, but I suspect they are referring to what is now thought of as DID .... but an aunt who was a nurse said no ...... in her opinion and experience it was likely to have been bipolar ...... but even a history of bipolar suggests trauma in the family history there somewhere.

My sister also has mi issues undiagnosed. She suffered what was thought to be brain injury as a result of childhood illness that landed her periodically in a catatonic state (I remember one vividly when she was around 18 months old, and I was 4yo. Now I wonder what it is that she has. I do know that she is extremely difficult to live with, but can manage periods of time of civil, if somewhat controlling, behaviour.

This means that whatever is coming at us from hubby’s genetics are compounded by mine ...... so God willing we can map some diagnoses out for our kids ahead of “middle age crisis” time when my hubby seemed to go haywire.

All in all, we are probably not doing too badly, the more I learn and begin to understand what the possibilities (probabilities ?) may have been.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

And the latest...

I think Older Daughter's latest emergency department incident shook her up a fair bit, and she came to the conclusion that she needed to see about getting another private psych clinic admission to get herself back on track. She's had a few things going downhill lately. She seems to have largely conquered her fear of water, but has developed other problems. Social anxiety has been getting worse. She can't handle doing shopping on her own at the moment. She's been crying uncontrollably after her psych appointments, to the point where she couldn't handle travelling home on her own from one of them, so we went and picked her up.

The psych who was in charge of her admission last time wasn't going to be available due to contracting issues this time, so her GP put in a referral with the plan being that the clinic would assign someone to her.

And yesterday she got the good but disconcerting news that they can admit her on Monday, and the icing on the cake is that her previous psych is available again, so she won't have to start from scratch with someone she doesn't know. Yay!

She was shaky about it when she rang me yesterday. Sounding excited, scared, teary all at once. So she'll be spending the weekend packing and trying to get her head around the fact that it's actually happening. We'll do the 2+ hour drive down with her, leaving about 8 in the morning to get there in time for admission. It's a pity they can't have a slightly later admission time for country patients. As long as she's coping OK emotionally, we should be heading home again about lunchtime. It would be good to get back before our younger daughter arrives home on the school bus. Understandably, she worries about her Big Sis, and we need to be there to support her too.

This means Older Daughter will be at the clinic for her birthday this coming Sunday. She'd thought about that possibility in advance, and would like us to have lunch with her at a Chinese restaurant that's within walking distance of the clinic. We don't know how many weeks she'll be in. She's hoping that she can get back on top of coping with everyday things before she goes home. Last visit helped... hope this one does too.

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