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Friends, families and carers

D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

Another SH hospital trip last night. She rang as we were getting in to bed; went in on her own by ambulance, taxi home...

She's talking about going in to the private clinic again. Her psychiatrist (who the local mental health team have decided they're OK with her seeing....yay...) has suggested medication changes to try and help with her every-night nightmares. I'm wilting at the thought of all the extra travel for us- admission, visits and discharge.

Also, when she moved out of home, I dropped out of the local carer support group. Am thinking we should reconnect with them.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Hugs @Smc, feeling for you...

The thought of having to launch into that sort of travel routine with a hospital stay again makes my head hurt so in some way understand your feeling of wilting 😕

I know I could not do it if darling had another stay away.

Praying that your daughter can find some peace and calm and get past this. And for all of your family for strength to get through.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Found this snippet in an ABC online news story today. Matches up with what we think we've been seeing.

"People who use painkillers for non-medical reasons redefine pain according to colloquial uses of the word. They often justify their use as being a form of self-medication for legitimate conditions such as depression, anxiety and stress.

This expansion of pain to include social and emotional suffering seems to be confirmed by the science. A growing body of research has found the neurological pathways associated with physical pain also "light up" when exposed to social and emotional forms of suffering."

Full article. https://www.abc.net.au/news/2018-11-08/painkillers-for-emotional-relief-anti-depressants-depression/10476348

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Thanks @Determined.

It's kind of made more difficult because it's come up close to Christmas time. We've got a few end of year catchups that we really want to be at, and I'd love to get our chaotic house into a more orderly and cheerful state so that we've got the option of invivting friends in, and so that it's just generally a more relaxing place to be. I don't know how far I'll get with that if we have this extra load.

I know she finds life so hard, but it's hard for us too. Somehow have to find the balance??

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

I believe we witnessed this with one of my siblings a while back @Smc,

All sorts of ailments that could not be diagnosed, including requiring the use of a walking aid for some years (for a person in their 20s). I always suspected it was more psychological than physical, and not doubting that there was actually physical pain. It makes a lot of sense to me.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Psychosomatic @Determined .... my D3 too .... not with a walking aid, but confined to bed at times with miscellaneous abdominal pain or 3-day migraines.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

And trying to work out that fine line between psychosomatic pain and attention seeking via medical "conditions"... Oooh it's hard!

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Is it harder or easier that daughter does not actually live at home @Smc?

Hope its ok to ask that, wont be offended if you don't answer.

I know when my mum was going through a rough time after dad died I wished she was not so far away (about 20min drive out of town) but I dont think I could have survived having her live with us either. (No disrespect intended to my mum). Not knowing how she was going throughout the day though was hard at the time between meltdown phone calls.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Feeling for you so much @Smc. The DID must make it so very much more difficult. You come to mind any time my D3 is struggling. I know we all have our own difficulties, but some are compounded. Wishing you ongoing courage and strength, forum sister .....

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Me too @Smc

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