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Severe TD

Severe TD

Hi. I have been treated for bipolar1, psychoses and ADHD. I have started to have severe TD. Tardive Diskenisia. My mouth and tongue are constantly moving and over the last 24 hrs it’s become severe. My son asked me if I had a tic. It’s embarrassing, very uncomfortable and I can’t control it. I have stopped taking my antipsychotic medication yesterday. I didn’t sleep all night and today I have been in bed crying all day. My psych and I are not on great terms ATM. I did ring and ask to speak to him urgently. No response. I simply can’t manage this. Any advice would be appreciated

6 replies

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In response to: Severe TD

Re: Severe TD

Hi @Kazbar I'm sorry to hear you're experiencing this, it sounds quite distressing. Did the TD start before or after you stopped taking your medication? Might be something to speak to a medical professional about, if it is possibly related. If you are really concerned, please don't hesitate to see a GP, call your local nurse on call (google 'nurse on call' + which state you are in), or visit a hospital Emergency Dept.

In response to: Re: Severe TD

Re: Severe TD

Thanks Jynx. I have been on meds for 25 years. It just started about 5 days ago and is getting worse. I only stopped my meds yesterday as I was concerned it was from them. It’s not quite as bad as yesterday but I feel so flat, constantly crying and hiding in my bed today. Maybe this is because I haven’t taken my meds?

In response to: Re: Severe TD

Re: Severe TD

I’m worried about going to hospital because they may admit me.

In response to: Re: Severe TD

Re: Severe TD

Mm could be @Kazbar - if you've been on these meds for a long time and suddenly stop, it could very well mess with your emotional state. This is why speaking to a doctor might be your best bet, especially if you've had a sudden onset of odd side-effects, like the TD.

I can very much understand your hesitation about going into hospital, perhaps keep it in mind as a backup though - if it means you're getting some insight, answers, and medical care if you need it, I'd hope that they wouldn't think you needed an admission if it's more about physical symptoms you're experiencing.

In response to: Re: Severe TD

Re: Severe TD

The issue I’m having is that I have dodged and weaved my way out of hospital for 6 months. I have been suffering mania and insomnia and haven’t been “very well”. I haven’t been into a psych ward for 5 years. Prior to that I went in about twice a year. I know it sounds crazy!!, but I now have a huge fear of admission. Probably because I know that I haven’t been managing very well for some time and every health professional I see wants me to have an admission

In response to: Re: Severe TD

Re: Severe TD

A tough spot to be in for sure @Kazbar - sounds like it's all catching up to you. Are you worried an admission would make things worse for you instead of better? Or is it lingering fear from your past experiences you don't want to repeat? Or something else entirely? All are very valid fears to have. It might be a question of weighing up whether you can sustain at the rate you're currently going, or whether some intervention from professionals could help you get back on an even keel.

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