Living with chronic pain

Hey @Gina2 I live with chronic pain too and it is so restricting at times. We have many members here (unfortunately) who live with chronic pain. It is nice to have a place we can come to get support. Welcome to the forums.

Hi @Zoe7

Thanks for your comment and thank you for welcoming me to the forums!

Gina2

How have you found the Peer Guide Program? @Gina2

@Gina2 @Zoe7

yes i was diagnosed as well. my research into covid has led me to realise fibro is a post viral auto-immune condition. This research is not widely accepted but they are learning more about it every day. I follow a bunch of doctors and researchers on twitter who share covid related info every day and they have said fibro is auto immune related. The issue is that medicine is highly political so getting the facts and getting the truth takes a long time.

Fibromyalgia likely the result of autoimmune problems | ScienceDaily

Hi @Gina2 @Zoe7

I have had chronic pain too - short story - severe osteoarthritis in my left shoulder

I know the daily struggle - and yes - fibromyalgia is an autoimmune disorder - something that needs to be managed - and I am sure you will find treatment in Melbourne - there are many pain clinics here

I can only wish you the best - inform yourself as much as possible and be proactive

Best wishes

Hi @Zoe7

Owlunar

Hi @Owlunar2 I was going to tag you here but was not sure how you were travelling - so thank you for adding your voice 😁

Hi @Gina2 @scruffypuffball

Hi Gina2,

Chronic pain is exhausting and it is difficult to not let it drag you down emotionally. I am in a place now where the pain is manageable and i am on a lot less medication. Took a long while and many ups and downs. Lots of physio now and lifestyle changes but it can improve!

I know that this thread has quietened down, however it is the newest thread I can find regarding chronic pain.

As a survivor of chronic pain, I would like to share this documentary called This Might Hurt on Chronic Pain. I think it is something you would all enjoy watching as it explains Chronic Pain in a new light. Unfortunately, Chronic Pain is poorly understood and many professionals can make you feel worse or in despair after a consultation. This happened to me many times and it wasn't until I found the right specialist that I was able to deal with the anxiety and trauma that intersected my Chronic Pain.

https://www.youtube.com/watch?v=LCGF0SXk50M

Enjoy.