Leonie1Senior Contributor
Aged Care Package sending me crazy
I was granted a level 3 Aged Care Package but can't access any services because I live in the Bush and will only self manage.
Potential workers will not sign up with providers because of the amount of paperwork involved. To sign up with a self managed NDIS recipient there is virtually no paperwork so that's where the workers are going. Naturally one of the first things I did was see if anyone local is registered with Mable. No. This is a big problem for those of us in the Bush.
There are so many discrepancies between the two systems. It's discrimination. I've written to the Human Rights and Equal Opportunity Commission and the Attorney General but will be some time before I get a reply. In the meantime I have an out of control bushfire an hour away, floods expected over the next few days and a provider that told me they were very flexible before I signed with them but have turned out to be anything but.
All the stress has triggered my PTSD. I just don't know what to do. I'm frightened. I have funds accumulating and no help in sight. The Provider is the only one benefiting. NDIS recipients don't even have to use a Provider. They're not means tested, etc, etc, etc. I feel like I'm going to lose my mind.
All power taken from me and I'm terrified of someone having me locked up in a mental asylum if I go "off". I just don't trust anyone anymore. My life has been one betrayed after the other. I can't cope 😭
No family or friends. Thank God for this forum.