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Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

On Tuesday 28th of March, we invite you to join a discussion about navigating life as a carer; including self-advocacy, preparation, support and setting boundaries, together with carer & SANE Peer Support Worker @FloatingFeather.

The event start times across Australia are below:

WA: 2:30pm
NT: 4:00pm

SA: 5:00pm

QLD: 4:30pm

NSW, ACT, VIC & TAS: 5:30pm

Want to receive a reminder on the night? Hit the 'Support' button below and we will tag you 30 minutes before the event starts.

New to the forums or want to get involved in this discussion? Check out the How To Guide for Topic Tuesdays.

Hope to see you there in the chat on the night!

53 replies

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In response to: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

In all honesty I don’t think it is something you can really prepare for. Listen to the professionals that are supporting the person you care for. Learn as much as you can about what they may be diagnosed with / what is happening. Try not to take things to heart if your loved is erratic / angry but knowing when to put boundaries in place if needed. Know who you can reach out to when it all gets too much. Knowing when you need to take a break and doing so before it gets too much. Seeking support from other carers.

For me the ride was like a rollercoaster. Some days things were okay, some days were filled with hope and other days were very hard.

Knowing that you don’t have all the answers and whilst you will do what you can to support your loved one recognising sometimes there’s only so much anyone can do.

In response to: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

hello @Brena74 , @Faith-and-Hope

hugs my @Krishna xx

In response to: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Guilt can be such a hard emotion to navigate in the context of a caring role @Krishna ❤️

In response to: Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

How might you prepare yourself to step into your caring role?

Like what @FloatingFeather , I don’t think it is something you can really prepare for.

in the case of my mum, over the years she has broken both hips, had bowel obstructions surgery and many other problems.

with my husband , the ups and downs, the meltdowns and time in hospital

In response to: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

I agree @Shaz51 - sometimes learning and accepting the guilt is part of caring.

In response to: Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

How might you be able to ensure you are supported in your caring role?

@FloatingFeather

In response to: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Thanks heaps.

In response to: Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

I don’t know that you can ensure you are supported but reaching out for support from professionals, friends, support groups is a step in the right direction.

Not everyone says the right thing, sometimes your lovely friends that have supported you as much as they can have their own things going on, some people after a while you can tell understandably don’t want to hear about it anymore.

Knowing when to say `no’ I can’t take on anymore.

My family member I care for had a good friend but after so many months they felt they needed to step away because they said my family member was constantly leaning on them for help and support, and they were exhausted and it was starting to impact their own lives. They reached out to me to let me know (which I appreciated) and they said something like `so can you please check in with your family member more often’. As much as it pained me to say it, I said no. I was going above and beyond in the situation already and I couldn’t offer any more support – I was maxed out already. I felt guilty saying that, but I had to protect me too.

In response to: Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

hello @ClockFace

very true @FloatingFeather

for me when the specialist said mum could not stay home anymore as she needed more care

My family were not supportive of the idea of her going into aged care but none of them put their hands up to help me more

then the doctor said with my phyical problems it will make it harder for me to cope and for my husband MI

In response to: Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

Re: Topic Tuesday// Calling all Carers! // Tuesday 28th March 2023 5:30-7PM AEDT

What is caregiver burn out? What are some of the symptoms and how can I try to prevent it?

@FloatingFeather

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