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Schizoaffective disorder and just getting by

Schizoaffective disorder and just getting by

Hi all, does anyone have Schizoaffective disorder out there? Mine’s really, really horrible: treatment resistant and I’ve had it for 21 years. I don’t have lack of motivation, I’m highly motivated but I suffer a lot of fatigue and have been hit hard the last few years by a number of setbacks: physical illness and florid psychotic manic episodes. I just wanted some encouragement that I do enough each and every day just getting by. I think we are al too hard on ourselves, particularly with the recovery model that therapists use. Some of us just won’t recover to our original lives after setbacks and that’s ok. I’ve done a uni degree, I’ve worked a bit but I’ve pushed myself to breaking point over and over. I’ve had about 25 episodes in 21 years and my illness is also chronic. Anyway, I just wanted some reassurance and I wanted to reassure others with schizoaffective disorder that it is one of the toughest out there. The way my moods interact with my psychotic symptoms and set each other off is so painful. Whatever we accomplish each day is enough 🙂

31 replies

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In response to: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hey there. Just reaching out to say your doing an amazing job.

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hey @Jade30 ,

I believe that post above was for you?

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hi, I am so sorry it’s taken me so many months to reply! I took a break from this forum but what a nice compliment to come back to, thank you.


I’m having a lot happier and calmer moments this year. I’ve been in the depths of deep recovery, ongoing but I am definitely getting there.

How are you going @Wolfpackx4

I hope you’re having a good day and giving yourself a big pat on the back for getting through.

In response to: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hi @insideblue

So sorry for taking forever to reply! I had a looong break from here. Just too triggered from memory.

I’m actually doing okay, still in deep recovery, I’m hoping to enter just regular recovery at some point!! Have had a lot of setbacks but living in each and for each moment. It’s all you can do really. The illness is a devious little thing and can really sneak up on you a lot but I’m managing.

I’m getting a bit more support, family (siblings) is growing in maturity and accepting that this illness will never go away so they are on board. Also, I’m able to enjoy some simple cafe outings, which is a joy.


Now about you, some time has passed but please tell me things are working out? If not, that’s ok as well. How are you? I believe you can get back on track again. I’m proud of you. And I’m so, so happy to receive your message after so much time. I thought everyone had forgotten about me!! Sorry again it took me so long to reply.

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Great to hear from you @Jade30 .

So good to hear that things are calmer. What's the secret?

Hope you have a great weekend!

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Thanks @tyme

Ahh, the secret…well I’m truly humbled as I read back on your words to my original post. Recovery has been happening. I gained a lot of resilience back last year. I’m not sure how to be honest. But I can def say I’ve learned a lot, still learning and I really don’t know as much as I thought I did. Recovery is happening, is all I know. Managing the everyday is constant but it’s getting a bit easier as my mind recollects itself and remembers techniques and skills.


How have you been? I hope you’ve been managing okay?

Enjoy your weekend also.

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

I'll be honest, from the time I started my recovery journey, I never went back @Jade30 It's been so rewarding. And yes, I am learning EVERY day.

I really don't know how I came to be where I am today. I never thought i'd make it as my life was hanging by a thread.

I hope you find it as rewarding as I have @Jade30

Things have been better than what it's ever been for me. It's not perfect, but I can't complain.

What do you do to keep yourself busy?

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

That’s wonderful to hear @tyme . I’m happy things are finally going your way, for the most part, very pleased for you.

To keep myself busy, I create. I make greeting cards using all sort of arts/crafts techniques. And so I have all my originals and then I teach members of my family and friends to recreate what I have made. That’s my happy place: teaching and creating.

I also enjoy walking a little and am so looking forward to Summer where I can just enjoy the outdoors.

I also like my trivia and enjoy reading up on all sorts of topics to build up my knowledge. Did you know that George II died from falling off the toilet? Fun fact for the day, I’m such a nerd.

What do you enjoy doing to pass the time?

In response to: Re: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hey @Jade30 ,

You're the second person this week who's asked me what I do to pass time. To be honest, I don't have much spare time.

If I do, I always time other things to do like take my nieces and nephew (and the dog) to the park or go for a bike ride.

Other than that, I'm always doing stuff.

I like daylight savings because I can do a lot more.

I spend a lot of time with my sister's kids. I also like swimming and water activities.

In response to: Schizoaffective disorder and just getting by

Re: Schizoaffective disorder and just getting by

Hi @Eden1919

I just wanted to ask how you’re going atm? It’s been a long time. I hope you are well.

I’m up and down like a yo-yo, never know what’s going to set me off.

Are you being kind to yourself? I surely hope so. Take care.

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