@Willy
Thanks for your offer to talk, I'll look into it.
I confess the information in your latest post breaks my heart and scares me badly not that it is new information to me, in fact it's something I experienced the greater risk of when he first started into this episode. As he grew extremely reckless and then tried to end his life. I didn't sleep without graphic nightmares for weeks I still don't really. I fear for him so much.
Is the fact he's 21 good or bad or irrelevant? I guess I'm asking another unanswer-able question there. The sad truth is you can't tell me he will be fine, no one can. I've learnt loving someone comes with endless worry, loving someone with a condition that impacts their lives is even harder.
Still, the ♥ heart wants what the ♥ heart wants.
You are right though that it won't be easy. We have more than just his condition to contend with. Even more than just mine.
I'm sorry that support group of yours got taken over that is how the government "helps" they don't assist they take over, they don't see the human being they see the condition and the dollar signs.
It's why I myself have no help and why I fear he won't get the right help either. Sometimes they are like a bull in a Chinashop barrelling through with platitudes and quick "fixes" not seeing the damage they are causing. It's their way or no way.
I agree too that for the most part SANE is a venting platform not active help.
Still it's been for me a little of what your group was for you.
Somewhere to go.
Is there any substance to the possibility the medication can cause early death with people who have schizophrenia? I'm not a fan of medication as I was sick at 17 and was put on medication that gave no appearance of reaction and then I was permanently damaged by it. My immune system shot and my blood poisoned for life. Making me allergic to the sun (a bigger deal than it sounds but true not as bad as some others)
I now cannot take anything without growing instantly more allergic to the sun and now sick with side effects too.
Can the medication he's on be doing something to harm him that we can't see?
Naturally I appreciate your blunt honesty but I'd be lying if I said it didn't worry me further.
It also breaks my heart for all the others too. Especially when some can be much better if help really was there.
I'm dreadfully sorry about your friends. Really I am.
Congratulations however on making it as you have that is no small achievement. You should be proud and to put up with such ignorant people. I've had that too with both my conditions and with his. I'm in the middle of taking to court the hospital for their latest mistreatment of me that also played into the stereotype of his condition too. Their actions caused such damage to us. It was dreadful so I get people can be just plain stupid and cruel. I'm sorry too that you had to suffer that. I hope you fair better if it happens again. We can only hope that the world of man is improving.
It's good for me to hear that others with the same condition as him can love, marry ect generally live happily enough like your friend (I wish them well)
At the moment utterly everyone around me is telling me to ditch him because of his condition even his mother blantly tells me routinely to 'get over her son' she is number 1 of the people who believe he can't have a decent life, have love or a family, work or a home or anything but just to wait to die and she makes him aware of her options often (though I can't tell if she realises she's doing it in every word every action) I think that is dreadful of everyone with anything- we are all still human beings- but especially of his mother. My family tossed me out because of my sun allergy so I dispise his mother for routinely putting that into his head. I feel some days like it's just me trying to fight his condition, fight for us, and undo all the damage his mother and the people around us are doing to him and to our relationship. Some days he himself believes he's not worthy of love and pushes me away disbelieving of my love -that I can love him despite his condition when no one else has not even his mother (I know the feeling well as I think it of myself for the same reason) - and it is routinely forced down my throat from others too. So hearing about love overcoming negative opinions and at least coexist along side conditions like ours is really really good for me. I'm feeling rather ill over the negative I'm forced to swallow endlessly.
It will be tough I'm no twit I figured that much out the instant he got sick. I had to watch him draw closer bad people but push me away and hold me accountable for their actions, accuse me of things I didn't do, suffer issues I couldn't address and still presently can't. I watched him go off the deep end, confess love to numerous people (yes some that were not real though I wasn't aware of that at the time) I watched him drink and smoke and not sleep or eat for weeks when these are not things he usually does. I watched from the side lines of his life while he unintentionally paraded people as his friends that actually were hurting me behind his back and then smiling to him while I was treated like a stranger. I got diagnosed with diabetes and couldn't even share that with him. I had a diabetic episode right in front of him and he just walked away. I watched him give my necklace (that he'd given me and had precious meaning to us) to another woman right in front of me because he didn't recall its importance or even who I was at the time. I watched daily as he reduced me from lover to friend to stranger time and again. He offered marriage and kids and then took it back 287 times in one day. I was constantly denied partner rights at the shelter and called so many nasty names by the other people in that place. I watched as they treated me like I was a danger to him and physically pulled me away from him they then kid me clear out of the city and force me to go 208 miles away. Not knowing if he was alive or dead for weeks. They have stolen his mail just because it's from me and I'm called a hussy by his mother and branded endlessly as some kind of evil with evil twisted designs on him that I am giving unwanted advances when in truth I've not been near him since this started. I've lived alone in the constantly changing aspects of what he wants and dasn't. For 2 months I've been completely cut out of his life and now only allowed to text randomly and only about happy things. If I get down or sick with my conditions I have to stop talking to him and basically feel like a naughty child sent to the corner. I now have no clue if he loves me at all. I'm presently at friend status and looking at the likelihood of a future either as a stranger with nothing to do with him or a life of just friends putting an obvious end to my dreams and all he'd once said he wanted too. I have to watch yet again as everyone who hurts him gets to know if he's safe and see him and be in his life (his mother promised to tell me if he was ever in hospital but didn't say a word for a month leaving me to fear dreadfully when I found out he'd been missing for over a month) he has directly told me he dasn't want to see me yet, however everyone else like his mother is allowed to visit. Why me? What did I do?
I live in the grey never knowing what is what. How much of late has been his condition talking and how much is proof he dasn't love me? Am I a fool or am I in the right fight. Fighting for us while he can't?
I have no one and am looking at my first birthday having someone in my life and yet likely to still spend my birthday alone. I am in a relationship but have to live and struggle through each day, each issue as if nothing has changed in my life and I am still alone. I nearly died again today from my conditions and can't even talk to him about it.
All the while that these issues, nightmares, struggles, insecurities, questions, fears, isolation and uncertainty are going on society just deems our relationship as all in my head. So often I have taken to showing some the photos that prove he did once at least that I haven't made that much up at least at the same time not knowing if those photos are just something that was but isn't anymore.
I've had to be homeless, move and nearly die dozens of times since he's been away and I've done it all alone and with no grantees I'm in anything anymore or if he still even loves me....
So yeah, I know a relationship with him with his condition will not be easy at all!
Yet he wasn't always like this. He was there for me when he could be so I hold out until I know for sure either way.
Society calls me crazy and he remains absent from my life for all intensive purposes and I carry on alone like nothing in my life has changed. That is how it is.
Society's a d#$% he's unwell and I'm alone.
All we have is hope. Hope he will come out of this ok and can give me clarification on how he feels about me, hope that it will aline with my dreams and wishes, hope society will eventually pull its head out of where the sun don't shine and that just because it feels like I'll be alone forever that it may not be true.
He exists. Ergo that's proof miracles can happen and that my life can change. So that's what I cling to. Right or wrong, stupid or courageous, it matters not. It's all I have.
Thanks for giving me insight and advice it helps a lot!
☺