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Confused About Mental Health Policy (TW: Politics)

Confused About Mental Health Policy (TW: Politics)

With the election looming, a lot of groups that focus on mental health & suicide have been throwing their 2 cents into the ring as to how a voter's interest in mental health ought to be influencing their vote. I'm subscribed to a fair few newsletters, ect. pertaining to mental health, and reform of the mental health system, and what frustrates me is that none of this material really tells you what's going on. They deal only in vagueries, or jargon that, I believe, few laymen would be able to properly understand.

This is a big deal. We need to know where our system is going and what our leaders are planning. Especially since there have been major calls for us consumers to be at the heart of shaping the future of the mental health system. But how can we participate in these conversations if we don't understand them?

One of the big names in mental health reform, Ian Hicke, recently made a statement about how his envisioned reform involves "new ways of coordinating services" and the adoption of resources like "big data... and new technology." But what does that actually mean? "New ways of coordinating services"? What new ways? What, specifically, does he want us to start doing that we aren't doing today? Give us some specific examples, please!

Likewise, "big data"? What sort of data? What sort of information are you going to record from us, and how will that be used?

On the surface, I can see how the ethical usage of recording a patient's needs, ambitions and character into "the cloud" could be an immense asset to the patients. If your going to match your patients with spouses, families, communities,workplaces, ect. that properly reflect who those patients are and tend to their personal needs, you probably are going to need a database that archives the character traits of numerous individuals and locales.

But is that what these leaders actually mean when they advocate for "big data"? There's no clarity to those sorts of ambiguous statements. And when you wade into the lengthier documents that these people publish, it doesn't get any better, because although they explain themselves with more words, it's all jargon, so you end up with no further clarity then you began with.

I'm no genius. But all the same, I can't believe that I would be unusual in my inability to understand this stuff. I reckon it would go over the heads of most laymen. It's almost like the conversation has been engineered to prevent the real, everyday patients from getting involved in it. And that's just wrong.

I just wish these people would talk in plain, simple english, so we all understood what, specifically is happening and what's being proposed for the future.

27 replies

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In response to: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

@chibam, I know that my occupational therapist, on hearing that I wanted to become a librarian, helped me with my negative and cognitive symptoms so I would appear more 'normal' and took me to a makeup artist to help me learn how to apply makeup nicely, so I could appear more 'polished' in social situations. She talked to me about librarianship, why I liked it, and said she thought I'd be good at it because of some personal attributes she'd noticed. She got me into a volunteer work position where I could brush up on my customer service skills, because my health precluded me from being a checkout/fastfood person in my teens, by being my second referee as well as telling me about it. She even came down and had a chat with my new boss to figure out if I'd have any foreseeable problems, such as the accessibility of the toilets, or if I could manage the clothes hangers ok with my good hand. She has also kept an eye out for entry-level library jobs and passed them on to me to apply for, and has offered to look over my applications before I send them in.

I think that what @hanami meant to say was that occupational therapy is not solely job related - if you look at the page hanami linked, it talks about meaningful activities - which could be a job, or it could be a volunteer position, or it could be participating in a sport or a hobby. Occupational therapists are very practical people, in my experience. They also look at breaking down the prerequisites for participating in an activity, such as what you need to live independently, that you need to structure your days so that you can participate in everything that you want to. If you say to your OT 'I want a job that's not a desk job' they will tease out some more specifics from you (like, if you prefer gardening work or some other kind of work) and they will help you towards something that you want to do.

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

@GwynnBetween you and @hanami , I'm getting the impression that seeing an occupational therapist is very much a game of russian roulette; you may strike one that will actually help you, or you may not. Very worrying, especially when you considder the question of what happens if you strike a therapist who is determined not to help you. I know all too well the perils of getting stuck with a therapist like that.

Equally worrying is that webpage (along with your story) seem to indicate that occupational therapists, much like other therapists, have a strong focus on "fixing the patient", rather then fixing their lives. Fixing the patients' lives doesn't seem to be an outright taboo for them, but it worries me how much leeway they have to decide that it is the patient that needs to be fixed, rather then their circumstances.

I wonder if there is a type of therapist that is duty-bound to focus entirely upon fixing the patient's life, and is not aloud to try to "fix" the patient themself?

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

Hi @Gwynn

Thank you for talking about your own experience with an occupational therapist. Indeed you explained it way better than I did!

My old job was in an older person's service so my explanation was remiss of having an OT support/prepare you for future job roles as the people I worked with were all retired.

🤗

hanami 💮

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

Hi @hanami , @chibam , @Gwynn , @Historylover , @TideisTurning

I have a feeling that the policies may be around using big data in new ways like in this video (especially the train station part). This video from Osher Günsberg shows how Australia is exploring mental health (focus on suicide) through different technologies. I don’t think it’s meant to replace in person support and care but run parallel to it to find the best ways to reduce suicide in particularly.

https://www.sbs.com.au/ondemand/watch/1939588163734

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)


@Teej wrote:

Hi @hanami , @chibam , @Gwynn , @Historylover , @TideisTurning

I have a feeling that the policies may be around using big data in new ways like in this video (especially the train station part). This video from Osher Günsberg shows how Australia is exploring mental health (focus on suicide) through different technologies. I don’t think it’s meant to replace in person support and care but run parallel to it to find the best ways to reduce suicide in particularly.

https://www.sbs.com.au/ondemand/watch/1939588163734


Thanks, @Teej .🙂

I'm afraid I'm not up for watching a full documentary on suicide at the moment, so I won't have the context to respond properly.

My concerns have always dwelt in the realm that it's not suicide that needs to be prevented, it's all the fates that are worse then it that need to be prevented. And when you focus on preventing suicide instead of the fates that are worse, that's when the real tragedies occur.

So I just wish I could trust that the powers-that-be were committed to using their powers and resources to eliminate the worst of fates, instead of the considderably more merciful (albeit more controversial) ones.

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

If that was the program I watched quite a few months ago, @Teej, I was disturbed to see that it was more about what they were 'experimenting' with now in the name of 'treatment', but not to do with actual causes.

In response to: Re: Confused About Mental Health Policy (TW: Politics)

Re: Confused About Mental Health Policy (TW: Politics)

I really liked that documentary but I do remember hearing criticisms around it too. There are so many different takes on what ideal mental health policy should entail. I think what Osher was getting at on this documentary was that there is not a one size fits all. Very complex indeed.

hanami 💮

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