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In it for the long haul...

SmcSenior Contributor14 Mar 2022, 3:46 pm AEDT

In it for the long haul...

OK... moving on from my old "something not right" thread, since the D.I.D. diagnosis we were given way back when has long since turned out to be inaccurate. We're still not really sure what would constitute an "accurate" diagnosis for our Older Daughter. Between psychotic symptoms, SH, SA's, assorted possibly psychosomatic illnesses (and some which may be real, but it's hard to tell one from another), some dissociative behaviours and a whole nest of other things... we really truly don't know. But it's been well over a decade of struggle, some times more extreme than others.

So peoples who know me, I'll use this thread to post updates from now on. If you don't know me... the old thread is here, but be warned, it's a long and complicated read. D.I.D....

And my personal self-care-ish spot here. Holding the ends together

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In response to: In it for the long haul...

Shaz51Senior Contributor14 May 2022, 2:11 pm AEST

Re: In it for the long haul...

@Smc , thinking of you and hope you are OK xx

In response to: Re: In it for the long haul...

SmcSenior Contributor31 Oct 2022, 9:31 am AEDT

Re: In it for the long haul...

Hi @Shaz51 @Determined et al...

Haven't updated this thread for a bit.

Older Daughter's had a bad run over the past couple of months, with increased SH and a couple of sub-critical ODs. She's linked these bad patches in to increased "voices" for ages, but the local public MH team has insisted that it's a behavioural problem, not psychosis linked, due to the fact that she's on anti-psychotics but still does all the above. They've continued to refuse to see her in ED so that they're not "reinforcing" her behaviour... gee that's really worked over time... not! You'd think given it was spectacularly unsuccessful they'd try something else?

But this latest run got so bad that they agreed to do some appointments and visits for a limited time. They adjusted her medication (timing and dose) and guess what... the "voices" have gone quiet for the first time in about a decade.

Part of me is relieved that it's working, part of me is kinda mad that they didn't take the possibility of psychosis seriously sooner. Could have saved her a lot of physical injury, the medical system a lot of ambulance callouts and emergency ward hours, and everyone a huge amount of stress.

We're not out of the woods as such though. Despite a quiet mind, she did do some serious SH last weekend, requiring another drive down to a big city hospital for complex repairs. So there is still a thing of years of mental habits to break. Nothing since though, and she's making a real effort to adjust to the strangeness (for her) of not having so much internal noise. We'll wait and see how things progress. We're encouraging her to fill the gaps with healthy noise, such as listening to music, which is something she enjoys at any time

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