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Accessing the NDIS

Accessing the NDIS

Girding my loins to have another run at NDIS and found this booklet produced by

VMIAC that hits the nail on the head for those with "psychosocial disability"

Many people applying for the NDIS find it emotionally challenging. These are a few
common experiences to bear in mind:

Anxiety and Fearfulness: Many people are fearful of being rejected, of losing supports
they’ve had in the past, or of being judged by assessors. Some people liken the NDIS
assessment experience to past experiences with Centrelink, where highly personal
information has to be shared with strangers, and the power rests with a big bureaucracy.
Some people are already fearful of using the telephone or opening mail–and this can
present a very practical barrier to the NDIS application process.

Frustration and Anger: Some people may feel frustrated at having to go through a
lengthy bureaucratic process to get support, especially if they are used to older service
models where there was little, if any, bureaucracy. Others may feel frustrated about
having to focus on deficits and disability, or having to justify their needs, or having to
repeat their very personal struggles over and over again.

A4-Booklet.pdf (vmiac.org.au)

NDIS is not consistent with recovery-orientated mental health practice, where the focus is on building hope and working with strengths.

NDIS focus is on permanence and deficits :

WHILE THIS IS NOT IDEAL, IT IS IMPORTANT TO USE NDIS TERMINOLOGY TO GIVE PEOPLE THE BEST POSSIBLE CHANCE OF BEING ABLE TO ACCESS DISABILITY SUPPORT SERVICES.

The last paragraph is particularly pertinent, as GPs are loathe to "remove hope" (as they see it) and can scuttle your (person with the disability) chances because of their philosophical difference/mindset. Not about the GP/specialist: it's YOUR need for support. YOUR barriers with functionality.

We ride at dawn!

10 replies

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In response to: Accessing the NDIS

Re: Accessing the NDIS

Great resource you've shared here @Jo-anneJoy
and All the best with your application 🧡

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

Thanks @Former-Member

In response to: Accessing the NDIS

Re: Accessing the NDIS

This made me cry. Because I have no idea how to access or even TRY to access the NDIS. And (feel like) I have very little support from my health professionals. And I feel powerless to do it myself.

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

Hi @Penny4

I just wanted to reach out and offer you some support 💜

Oh @Penny4 💜 I’m so sorry to hear that you’re feeling so distressed and powerless in relation to trying to access some additional support through the NDIS and my heart goes out to you 💜

Late last year, I applied to the NDIS for some additional support (and although my application was successful) I found the process incredibly overwhelming and confusing 💜

I wasn’t too sure if this is something that you’re still interested in applying for, but if this is a path that you’re thinking about venturing down and you would like someone to talk with, I would be more than happy to share some of my experiences with you 💜

Also, just while I remember, one of the things that really helped me when I was new to the forums and still finding my way around, was that if you would like to chat with another forum member, or reply to one of their posts, place @ in front of their username just like I did at the start of my post to you i.e. @Penny4 that way, they will receive a message that you have contacted them 😊

Please remember that you’re always welcome to reach out here whenever you need to 💜

Take kind and gentle care of yourself,

ShiningStar 💜

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

@ShiningStar

Thank you! I found a friend who has been able to help me understand things better. AND... I've actually begun the application process!! I would like to say that I'm confident in a positive outcome, but I'm not going to jump ahead. Just one (messy) day at a time.

Your words of support mean more than words can say.

Thank you!

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

Hi @Penny4

It’s so lovely to hear from you 💜

You’re welcome - it was my pleasure to reach out to you 💜

Wow! Just from what you’ve shared, it sounds as though you’re doing an amazing job of navigating your way through the application process and that’s fantastic that you’ve started to complete your application - well done!

As I listened to this part of your story, I could hear so much confidence in your voice and it definitely sounds as though you’re feeling so much more optimistic than you were a few months ago 💜

Absolutely! Sometimes, it can be so tempting to jump ahead of ourselves - especially when something is really important to us 😊

I would love to hear how you’re travelling with everything - if this is something that feels comfortable for you 💜

In the meantime, please remember that you’re always welcome to reach out here whenever you need to 💜

Take kind and gentle care of yourself,

ShiningStar 💜

In response to: Accessing the NDIS

Re: Accessing the NDIS

Thank you for this. I'm getting ready to apply after the many promotions by my psychologist and psychiatrist. Just have to mentally great myself up for it. Stress is not good for me and I often crumble. So fingers crossed!

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

I applied to the NDIS in 2020 and it was knocked back because "I had not exhausted every treatment option". This is because my submission contained a psychiatric report that said DBT would be helpful and I had not tried it.

So in 2021 I went back to my GP and pyschologist to try again. They were not very willing. My psychologist was very negative about my chances of getting NDIS funding saying "even people with schizophrenia get knocked back". She was very unwilling to get involved in the application process. But I insisted and persisted and the GP and pscyhologist finally relented.

In fact, the second application was done by the nurse at the medical practice.Thank you whoever you are. You did a fantastic job and really took the time to fill out the 30 page application (which took like 1 and half hours).

What was key in getting my second application through - apart from the help from the nurse - was that I got the GP to write a letter saying "this patient has tried DBT since his last application and it was not helpful".

So the second application was approved by the NDIA and I got $30,000!!

This funding has opened the door to accessing long-term psychological treatment with schema therapy (which takes 2 to 3 years minimum) with once or twice weekly sessions at a cost of $180 per session (that is $10,000 to $20,000 a year alone). It also pays for a support worker to come around and take me out for coffee or whatever. (another $10,000 a year)

If you have a serious PD - like I can't work or make friends or anything and I'm on the DSP - then you stand a good chance to get NDIS. You just have to have a psychiatrist or GP say you show you have exhausted every treatment option and are still experiencing serious disability. Every treatment option means having done DBT because psychiatrists all believe DBT will help BPD patients.

In fact, the evidence is very inconsistent. From reading the clinical trials, DBT probably only helps like 30% of patients and to a limited degree. Benefits are often not permanent. SI and self harm might still continue, moods still fluctuate like crazy, sensitivity to criticism persists etc etc.

Basically, DBT does not change your personality/identity, it does not change your distorted core beliefs and pathological identifications. Most BPD patients remain damaged psychological children in adult bodies even with DBT training and skills.

I'm told schema therapy tries to go deep, tries to get to the core of the BPD patients troubling identifications. In my view, schema therapy is the only form of identity therapy that is currently available in Australia. And by its very nature, identity therapy is going to take many years to heal the damaged personality that is the source of most of our self-generated pain and suffering.

I am starting schema therapy in a couple of weeks by telehealth (which is not ideal). This is because none of the psychologists trained in schema therapy where I live are taking new patients and I am on a waitlist to see one of them. In the meantime will start schema therapy by telehealth and get the process going.

Best wishes

SJ

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

hey @ShiningStar

i was wondering if you knew how someone would go about getting support from the NDIS for mental health? or where to start? you sound like you have some idea and i would appreciate any help i could get.

thankyou!

In response to: Re: Accessing the NDIS

Re: Accessing the NDIS

Hi @moocowplant

It’s so lovely to hear from you 💜

Oh wow! That’s wonderful that you’re applying to the NDIS for some additional support and I would be more than happy to share some of my experiences with you 💜

In my experience, applying to the NDIS was such a huge step and as such, there were definitely times when I felt incredibly overwhelmed and confused!

As such, I’ve just tried to break everything down a little bit, so that hopefully the application process feels a little less daunting for you 💜

Basically, applying to the NDIS involves completing a form called ‘An Access Request.’ I wasn’t too sure if this is something that you’re familiar with and so I’ve just shared the link to this particular document below, so that (when you feel ready) you can have a look through it 😊

https://www.ndis.gov.au/how-apply-ndis/what-access-request-form

As you scroll through the form, you’ll notice that it’s divided into section 1 and section 2.

Because you’re the applicant, you only need to complete Section 1 and then your treating health professionals complete Section 2 😊

When I was putting my application together, my GP completed all of the questions in section 2 and my Clinical Psychologist wrote a detailed report to address Part E (in section 2) which asks for ‘Evidence of Functional Capacity.’

As such, they described how my psychosocial disability (i.e. mental health conditions) impacted my functional capacity in relation to mobility, communication, socialising, learning, self-care and self-management - which are the key domains that they have to write to.

In my experience, asking my Clinical Psychologist to write a report that covered the key domains worked really well, as my GP didn’t need to answer this particular question - they just wrote ‘refer to Clinical Psychologist report’ which saved us a lot of time!

Sometimes it can be tricky to describe how the disabilities that we’re living with impact our functional capacity and so I just thought that I’d share an example from my application in the hope that this will help to illustrate what this can look like 💜

For example, I live with c-PTSD, Major Depressive Disorder, Body Dysmorphic Disorder and Obsessive Compulsive Disorder (H) Therefore, when we looked at how living with these mental health conditions impacted my functional capacity in relation to the key domain of learning, my Clinical Psychologist wrote: ‘Low energy, fatigue and cognitive distortions make practicing new skills challenging.’

Once my Clinical Psychologist had completed the ‘Access Request,’ they had to complete another form called ‘Evidence of Psychosocial Disability.’

Although this form is on the NDIS website, I had trouble finding it! As such, I’ve just shared the link to the section of the website where you can find it, so that hopefully this will make things a bit easier for you 💜

https://www.ndis.gov.au/applying-access-ndis/how-apply/information-support-your-request/providing-evidence-your-disability

Once you’ve completed the ‘Access Request’ and the ‘Evidence of Psychosocial Disability’ and gathered all of the supporting documentation (such as proof of age and proof of residence) you’re ready to submit your application 😊

After this, it’s just a matter of waiting to hear if your eligible to receive support through the NDIS (and if you are) you’ll be contacted to arrange a planning meeting to discuss your support and funding needs 💜

Although my Clinical Psychologist and GP did an amazing job of supporting me through the process, there were times when I didn’t know how to answer some of the questions and as such, I reached out to my Local Area Co-ordinator for help 😊

Basically, ‘Local Area Co-ordinators are the main point of contact for people who are applying for and / or who are receiving support through the NDIS. As such, they can support people to understand the NDIS, apply to the NDIS and connect with other government and non-government supports.’

I’ve just shared a link from the NDIS website that explains how your Local Area Co-ordinator can support you, just in case this is something that you would like to explore further 💜

https://www.ndis.gov.au/understanding/what-ndis/whos-delivering-ndis/lac-partners-community

There’s also a section on the NDIS website where you can search for a Local Area Co-ordinator in your area 😊

I wasn’t too sure if this is something that may be helpful for you and so I’ve just outlined how you can find a Local Area Co-ordinator on the NDIS website as there’s a few different steps involved …….

If you click on the link below, a map of Australia will appear 😊

https://www.ndis.gov.au/understanding/ndis-each-state

Once you’ve clicked on your state, you’ll notice a table of contents at the top of the page 😊

If you scroll down the page, you’ll see a large heading called ‘Find Your NDIS Partner in the Community.’

If you click on this heading, a document that lists all of the Local Area Co-ordinators in your area will start to download and as such, you’ll be able to see who provides support in your area 😊

I really hope that this helps you a little bit and that I haven’t confused you 💜

Please know that you’re always welcome to reach back to me if you have any other questions (however big or small 💜) or if there’s anything else that I can do to support you - it’s never any trouble 💜

Take kind and gentle care of yourself,

ShiningStar 💜

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