no one is listening

I'm sorry no one is listening @Eden1919 . Sadly I can relate to not feeling heard. It is so frustrating and distressing when you try so many things and talk to so many people and nothing works hey? I don't really have anything to offer I'm sorry, but I am listening 💙

@LostMummaSloth thanks it just makes me want to cry because i know i am out of options and it is still destroying me but people just expect me to just be fine and keep going all the time.

@Sleepy_Catcoon Idk what the help would look like at this stage part of me feels like it is just too late and that now nothing would work anyway. And no I don’t have a dr monitoring the health issues because it apparently isn’t a problem to anyone else and not worth people’s time I just need to “work harder” apparently.

hey @Eden1919 it can be so painful feeling that no one is listening to you, especally when it comes to issue that are so so important.

We're sitting with you, we're listening.

hi @Eden1919 im very short of word at the moment but just wanted to say i hear you and i see you. i would you really like to come back and reply some more when i am in a better head space.

I'm sorry to hear you are having such a a tough time.

Not being listened to is tough. I know how hard it can be too feel invalidated.

Hoping you find some clarity around what you need soon. Sometimes knowing what could help is the hardest part. For me, breaking it down to absolute basics can help sometimes. But I know it isn't always as simple as drinking some water. haha

- periwinklepixie

thank you all for listening. I am still struggling a lot with this and i really dont know what else to do except give in. i want to cry this is torture i dont know how i am meant to survive this. i cant stand being in my body. everything is too much.

Sitting with you as well @Eden1919 . You have been able to survive so far, and I believe you will continue to do so. Even just coming here and talking about it is surviving. Sending many virtual hugs your way

Hi @Eden1919 wanting to see how you are doing today? And give some support if I can. EDs are so difficult to navigate and I am really sorry that this is something that you have battled with for such a long time and that despite your efforts to get help, you haven't found any. Please don't give up.

It took me a while for the right person to hear me. I had 2 gps dismiss me, they didn't even care to ask me any questions or check me over medically, probably because I too live in a larger body. Little did they, or I know, how medically unstable I was at the time and I ended up in hospital for a week.

Can I encourage you to keep looking for a good gp that will hear you. Unfortunately EDs are so complex and a lot of the medical professionals are uneducated on them. I know that you mentioned that you have reached out to the butterfly foundations, did they give you a list of local professionals that are experienced in EDs? They can also provide you with information to take along to your gp if you feel your gp doesn't understand.

Have you seen a dietitian? I think there is a misconception that dietitian will just tell you want to eat. That's what I thought when I first started seeing mine anyways. She has done far more than just help me set up a meal plan. Before I started seeing my current psychologist, my dietitian helped me more than my psychologist.

There is help out there @Eden1919 this is not something that you have to battle through on your own. It is very much a journey. I had a zoom appointment with my ED psychiatrist yesterday morning, she is a professor in EDs, this is where I hate that we have to be so anonymous in here! But she explained that EDs are like a game of snakes and ladders. Sometimes we journey along the board, we travel along well and go up the ladder and we keep climbing and sometimes we go down the snake.... she explained my recent hospital admission was one of them. But once we start recovery we never go back to the start.

I still struggle a lot. I'm no where near the top of the board, I have weeks where I slide down numerous snakes and it feels like I'm at the bottom. But it just takes one goid conscious decision to step towards recovery and I can get moving again.

Please keep reaching out, the right people are there waiting. Here if you ever want to talk. 💕