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Advocating for change

Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Hi SANE Community,

If you or someone you care about uses the Victorian Mental Health System for support, we have a special Topic Tuesday for you.

You might have heard the Victorian Government recently committed $3.8 billion to implement all recommendations of the Royal Commission into the Victorian Mental Health System, to rebuild the system from the ground up.

What will these changes look like for the mental health system and the people who use it?

To help us understand the future mental health system envisioned by the Royal Commission, we’re joined by special guest Graham Panther - a mental health advocate who was a witness before the Royal Commission. He is also the co-founder of the Big Feels Club - creating spaces for people with ‘big, scary feelings’ to hear from others with similar experiences.

What is the Victorian Royal Commission into Victoria’s Mental Health System?

The Royal Commission into Victoria’s Mental Health System was an intensive two-year inquiry, producing a final report that stretches over five volumes and 3000 pages. Its recommendations provide a blueprint to completely rebuild the mental health system.

The Royal Commission called for lived experience to be embedded at every level of the future system.

This Topic Tuesday will be an opportunity to learn more, ask questions and find out how to get involved in mental health advocacy yourself.

To learn more about Graham, please feel free to check out the Big Feels Club and the amazing work he is doing in the lived experience leadership space in Australia!

Please join us here on Tuesday 17 August 2021 from 7:00pm-8:30pm AEST to follow this conversation.

Want to receive a reminder on the night? Hit the 'Support' button below.

New to the forums or want to get involved in this discussion? Check out the How To Guide for Topic Tuesdays.

_________________________

This topic is a big one for anyone invested in the future of the Victorian Mental Health System. While each of us have different experiences of the system – from positive to extremely challenging - we want to make sure that this space is an open and respectful space to hold all of our experiences. Before joining this discussion, we would encourage you to familiarise yourself with the community guidelines so we can make this space as supportive as possible.

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In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST


@Former-Member wrote:

Hey @chibam thanks for this - I've heard many people ask about these definitions.

Here's a direct copy+paste of how the Royal Commission describes wellbeing supports:

Box 6.1: Wellbeing supports (see p. 294 of volume 1 of the report)

"As part of the shift to a more balanced system, the Commission has chosen to use the word ‘wellbeing’ in place of the word ‘psychosocial’. This is because the term ‘psychosocial’ is highly technical, with limited meaning in plain English. It is also heavily associated with the disability-based language of the National Disability Insurance Scheme (NDIS). Instead, the Commission uses the term ‘wellbeing supports’ rather than ‘psychosocial supports’. The Commission envisages ‘wellbeing supports’ encompassing a broad range of supports that build community connection and social wellbeing, as well as practical life assistance."


Thanks, @Former-Member ! It would appear that the answer to my initial question would be "yes", then! Hooray!

My follow-on question would be: are these supports intended to be made available for people who aren't mentally ill, or perhaps more accurately, for people who's problems haven't yet driven the sufferers into "mental illness" or being suicidal?

Or will you have to be pronounced "mentally ill" before you can access them?

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

"What are your feelings on the integrity of the royal inquiry process...? If you are confidant that the process had integrity, despite the mental health system/mental health doctrine influence over it all, what is it that gives you confidance in the process and the fairness/accuracy of the results?"

@chibam

It's a big question. I will say, when I first heard about the structure of the Commission, I was not happy. The big glaring gap for me was at the top: not one of the four Commisioners had disclosed first-hand experience of using services.

So to be honest, early on I did have my doubts. Two things changed, for me. One, people started to raise this as an issue, which indirectly resulted in a number of lived experience leaders being brought into the process in key ways. That was a much needed and major shift. Two, that was enough for me to get involved myself, as a witness - eventually sitting down with the Lead Commissioner, and despite still being skeptical, seeing some encouraging signs of the real possibility this represented for Vic.

But the biggest answer for me is around the outcomes of the process. The 74 recommendations contain some really significant changes, that - if we do them right - could genuinely help a lot of people. I don't claim to be an expert on all the coming changes, but the bits that I know most about - around peer support and lived experience leadership - contain some real seeds of change. Which I'll talk about a bit more shortly.

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Question 2: What are you most excited by in the recommendations?

There are 74 total recommendations if you consider both the final report and the interim report that came out mid-way through the Royal Commission. I am by no means an expert on all 74 (I imagine

some of you will definitely know more than me).

But here’s four things I was most excited to see, first up (and I'll unpack each one)

1. Alternatives to emergency departments

2. Peer respite

3. Peer support EVERYWHERE

4. A hub for lived experience leadership

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Question 2: What are you most excited by in the recommendations?

Exciting thing #1. Alternatives to emergency departments

Emergency departments can suck at the best of times. They can especially suck if you are there for mental health reasons.

The Commission has recommended that genuine alternatives are created in every region in Victoria so that there’s somewhere better to go when things get really tough. (See Recommendation 9)

Picture, instead of heading to a white, fluorescent-lit emergency department to front up to a harried nurse and tell them your troubles, you could go to a living room type “drop-in” centre, where a majority of the staff are people who have been through their own similar crises and are trained to support you through it.

These alternatives to ED have been set up in other parts of the world where they’ve been reported to reduce admissions to psych hospital by 50%, because they meet people’s needs right there and then. And speaking of hospital...

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Thanks for raising this @Kermit. The Royal Commission made two key recommendations that aim to improve accessibility for Victorians living in regional and rural areas. I've pasted these below.

Recommendation 39: Supporting the mental health and wellbeing of people in rural and regional Victoria

The Royal Commission recommends that the Victorian Government:

  1. in addition to ensuring rural and regional communities receive the benefits of the Royal Commission’s recommended responsive and integrated mental health and wellbeing system:
    1. provide additional resources to enable mental health and wellbeing services operating in regional Victoria to deliver services to small or geographically isolated rural communities; and
    2. by the end of 2022, trial two new digital service delivery initiatives in rural and regional areas that meet the needs of local communities.
Recommendation 40: Providing incentives for the mental health and wellbeing workforce in rural and regional areas

The Royal Commission recommends that the Victorian Government:

  1. address mental health and wellbeing workforce supply needs in rural and regional areas and establish an incentive scheme to:
    1. attract mental health and wellbeing workers to rural and regional mental health and wellbeing services; and
    2. retain mental health and wellbeing workers in such services.

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q. What are you most excited by in the recommendations?

Exciting thing #2. Peer respite.

Imagine if when you’re in a real bad spot, hospital wasn’t your only option. If instead you could check yourself into a residential service that’s homely, inviting, and most importantly that’s run by people who’ve been through their own similar crises.

We’re about to do this in Victoria. (See Recommendation 5 from the Interim Report).

Called ‘peer respites’, these have been run successfully in other countries for years.

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST


@BigFeelsClub wrote:

I don't claim to be an expert on all the coming changes, but the bits that I know most about - around peer support and lived experience leadership - contain some real seeds of change. Which I'll talk about a bit more shortly.


The sincerity of that commitment concerns me, as there is another inquiry into the mental health system and suicide being conducted by the fedral government right now and, as far as I know, none of the committee members presiding over it are mentally ill or currantly/formerly suicidal people.

This is well and truly after numerous reports, including the royal inquiry interim report and the productivity commission report emphasized the need for lived experiance leadership in the future management of mental healthcare. #SMH

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q. What are you most excited by in the recommendations?

Exciting thing #3. Peer support EVERYWHERE.

The Commission has recommended that peer support be a core part of the new community model of mental health care (see Recommendation 5). That means that every region in Victoria will be required to deliver peer support services, so we should see more offerings in this space.

It will take time, but our hope is this will also drive a cultural shift in how services are delivered in general, because there’ll be more people like us in there doing the work.

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q. What are you most excited by in the recommendations?

Exciting thing #4. A new hub for lived experience leaders.

This last one is really what we’ll need to make sure everything above is going to happen. It’s basically a hub for lived experience work in Victoria, run by people with their own big feelings. (See Recommendation 29.)

Led and staffed by people with lived experience, this new agency’s main purpose will be to increase lived experience leadership throughout the system, so that things like peer respites and other peer-run offerings become more commonplace. I know from running the Big Feels Club, when we sensitive cats get to run services ourselves, they can look and feel very different to more mainstream offerings. I think that diversity of services is the only way the system can offer people real choice.

If you’re interested, you can read the full piece from Big Feels Club about these four exciting things here.

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

How do you 'qualify' for a peer support role, everyone has different experiences even if we all deal with the same stigma, what makes a good peer worker, is personal experience enough? what else do you need?

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