Share a cuppa?

@Bow @Former-Member @Shaz51 @Adge @NatureLover @tyme

The cheeses I got are from ALDI. They cost less but still taste great.

@Former-Member

I wondered why you were on crutches? Just tell me to mind my own business if it’s personal

Oh, those cheeses sound lovely @Oaktree 😍

Thats understandable regarding pâté, too (my autocorrect may have - for the first time ever - got something right with ‘pâté’! 😁)

And, thank you kindly regarding the O2 concentrator 💜🙂🌺

Ive had some health changes, and it’s also impacted on my emotional and cognitive health, however I’m trying to stay focussed on being proactive/preventative (when possible, or at least slowing things down from progressing where I can), and being resilient by using skills learned in years gone by (just using them in new ways to cope/manage/keep going 🙂🌺).
the concentrator will stay in a location in the middle of the house, and I’ll use 12m of hosing (the thin O2 tubes) and the little nasal prongs to wander around on supply, where I can walk past it and turn up/down the flow according to how much activity I’m doing (standing cooking vs sitting typing, etc). I just have to watch my footing/where I place my crutches so I don’t have more falls from getting stuck in it…I was thinking how to set it up so the tubes weren’t trailing on the floor, but the only thing I can think of so far is an overhead wire gantry-like system with a roller clip.
Anyway, I’ll think of something, and rig it up 🙂🌺

Oh ok that’s interesting @Former-Member

The tubing and crutches might take a bit of navigating but you will get used to it. Have you got a little O2 finger monitor? So you can keep an eye on your oxygen saturation levels? I think I saw some of those at ALDI a while ago but I am sure you could pick one up at a chemist warehouse store. I am glad that you are working on being resilient with your health changes. That will be a big part of the battle so that they do not impact your mental and emotional health so negatively

Do you sleep with it 🤔 @Former-Member

Sending you hugs my friend ❤️

My specialist is talking about dialysis in the near future and we don't have any places here so I would have to travel 60kms away 4 times a week or have a machine at home and be on it overnight

No worries @Oaktree 🌺🙂

being on crutches is sometimes one of the most public things to happen..everyone notices, everyone sees ☺️💜

I don’t mind that you ask 🙂🌺

I have peripheral neuropathy, as well as central nervous system injury/damage from a rare bone marrow problem that makes little proteins & immune cells that go around my body being proper thugs to my organs and tissues.
The damage creates loss of balance, weakness in limbs, and loss of sensation from toes to knees, fingers to elbows.
I use crutches to help me walk more upright-ish-ly and less fall-down-ish-ly.☺️

It works most of the time 🙌🏻🌺

Poor @Shaz51

Dialysis is so hard… big hugs for you too. You are being very brave about it all. I hope you can get a kidney transplant instead. I am in awe of you!

@Former-Member

I just wanted to tell you how much I like and admire you. You are so outgoing and friendly and positive even though you have so much going on in the background. Gold star for you my friend.

Oh @Former-Member

I have heard of neuropathy. That really sucks. I am glad that the crutches stop you from falling too often. Will your condition worsen and put you in a wheelchair? I hope not for your sake but if it does I am sure you will handle that in your stride too. You seem to be a very positive person. My mental health struggles are nothing compared to your physical challenges. Actually my mental health has been really good for like 3 years. I am on a good combination of medication that seems to be working. Long may it continue

@Bow @Former-Member @Shaz51 @Adge @NatureLover @tyme

I guess we each have our own different and unique challenges but that doesn’t invalidate any of them. We all need to learn to cope with our own challenges the best way that we can.

neuropathy, yes @Oaktree , @Former-Member

Doctors are always keeping me aware of it xx