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How do I keep going? Chronic emotional and physical pain.
MixedManContributor
How do I keep going? Chronic emotional and physical pain.
Hi All, I just signed up today, so please forgive me if I'm a bit all over the shop.
I am feeling so alone. So isolated.
I have depression, Anxiety/Panic, BPD and Bulimia. I have also been living with chronic spinal/hip/leg pain for 4 years.
I'm also very sad, for what was, and what is.
In early 2012 I got promoted, the job of my dreams. I was working for a great govt department and earning a generous salary. Then in late 2012 my world fell apart. I was diagnosed with depression and anxiety in 2010. And I was starting to become unstable. My employer was great! Helped me do as much as I could, respected when I couldn't get out of bed and even gave me additional sick leave. I then hurt myself in 2012 playing sport. What I thought was just a niggle or strain turned out to be much more sinister. The pain was excruciating. Once again, work was excellent in supporting me. But I fell apart. I was hospitalised into a psychiatrist facility. I was a danger to myself. I thought the mental suffering was enough, but put physical pain in as an additional Ingrediant and I couldn't go on. In 2013 I took a "career break" to get better. After that 12 months I was still too unwell to return to my role.
It got to a point where I had to leave Melbourne in 2013 as I couldn't afford rent & treatment and living expenses. I moved home to my small country town with my mum. This town is built on a factory and dairy farming. I didn't fit in, and being gay was not inductive to rural living.
After multiple surgerys, procedures and injections. My specialist has told me I will be in pain for the rest of my life to some degree.
The cost of health care has left me broke & with nothing. I sold all my household belongings to stay afloat, it didn't last long. I'm at risk of losing my car, which is essential being in a rural area and my treaters are at least half an hour away.
My Mother and I don't get along, she had made it clear she doesn't want me here, she went so far as to kick me out at one point and told me I'm the reason she is suicidal, she in an abusive alcoholic.
I have lost all my close fringe through being away and not being well. I have no other family support - they don't believe I'm in pain and my sister told me to stop being a "drama queen" to get a job and work through the pain. I had surgery last week and not a single Immediate family member has even so much as texted me to see if I'm ok or if it went well.
Sorry I'm rambling. My point. How do I go on? I'm in the body that won't allow me to work, a financial position that disables me from living rent free with my Mother. I still have aspirations, I want to work again, I want a boyfriend, I want to be back "home" in Melbourne where I can be myself without fear nor hesitation. Am I asking too much? I'm so lonely, sad and isolated that I don't know whether I can keep fighting on or I just give up. How can life be so cruel? I don't like who I've become and I resent my circumstances. I wish things were so different.
People, how do you keep the faith? I'm at breaking point.
In response to: How do I keep going? Chronic emotional and physical pain.
Fancy_PantsSenior Contributor
Re: How do I keep going? Chronic emotional and physical pain.
Hi @MixedMan
Welcome to the forums.
I am sorry to hear about everything that is going on it sounds overwhelming, I hope that within the forums you can find support and connection to others
Its good to hear that you still have aspirations and are still pursuing the life that you want, as with many others here it is very courageous
but I just need to let you know that unfortunatley we are not equipt to respond to crisis on here so if you are feeling vulnerable then please contact someone because there are agencies that can help
if however i have read it wrong then that is great
does anyone have any ideas about how to stay hopeful? what has worked for others?
In response to: How do I keep going? Chronic emotional and physical pain.
MixedManContributor
Re: How do I keep going? Chronic emotional and physical pain.
Hi @Fancy_Pants! Oh no, I'm not in a crisis. I'm not contemplating harming myself in any way. I just wonder how others continue to stay focused on making a better future as I daily ponder what could have been and what I feel "should have been" don't stress I'm ok. Thank you for your concern.
In response to: Re: How do I keep going? Chronic emotional and physical pain.
hope77Senior Contributor
Re: How do I keep going? Chronic emotional and physical pain.
Hey,@mixedman, Have you tried moving closer to where your treatment is. Could you not contact Centrelink and ask for disability Support. you have a great sense of what you're capable of. Hang on to that and when your ready you can find work. Ask your doctors to give you a letter to give to Centrelink. And get away from your family they don't deserve you. wish you peace and hope the future comes quicker than you think and you can return to Melbourne where you're appreciated
In response to: How do I keep going? Chronic emotional and physical pain.
MixedManContributor
Re: How do I keep going? Chronic emotional and physical pain.
Hi @hope77 My disability application got rejected this week just gone, I can't afford to move elsewhere. I am on a priority list for housing in Melbourne. I'm doing all that I can, that I am aware of to regain my independence and become my own person again, it's just gonna take some time. Thanks for thinking of me and the suggestions.
In response to: How do I keep going? Chronic emotional and physical pain.
utopiaSenior Contributor
Re: How do I keep going? Chronic emotional and physical pain.
@MixedMan. Sorry you have had such a hard time with little or no support from your mum & Centrelink. I'd recommend asking for a review from centrelink regarding your rejection to the disability pension. Did your gp write down how long they expect you to be 'unfit for work'? Also, ask your gp for a mental health care plan so that you can receive some free counseling from a psychologist. Your psychologist should also be able to write a letter to centrelink informing thdn of the approx time line you will be unfit to work - just purely from a mental health perspective. Don't give up. A no from centrelink just means you take it a step further. Alsi, when you are ready to return to the workforce - make sure centrelink places you with a Disability job search provider - you get mmore help. Also maybe make an appointment with the Centrelink Social Worker. Take all your medical paperwork with you - physical and mental illnesses. I've had more luck going through the Social Worker. Although I'm not on the disability pension. Good luck. Keep fighting and get some therapy for yourself. It really does help
In response to: How do I keep going? Chronic emotional and physical pain.
MixedManContributor
Re: How do I keep going? Chronic emotional and physical pain.
Hi @utopia - yes familiar with the appeal process and the services available when the time comes. I hard surgery last Friday and got the rejection Monday. So I've just had to focus on recovering this week. I see a psychologist, have a mental health plans and an ECP in place. Also up to date with requiring medical evident etc. I'm very much across that side of things, been doing it for years.
In response to: How do I keep going? Chronic emotional and physical pain.
utopiaSenior Contributor
Re: How do I keep going? Chronic emotional and physical pain.
@MixedMan. Surgery Friday and a no letter on Monday. Makes you wonder whether the people that make the centrelink rules are even human. I'm glad you know the ins and outs and that you have support. I'm just sorry that logic hasn't been used by Centrelink.
In response to: Re: How do I keep going? Chronic emotional and physical pain.
Hope46Casual Contributor
Re: How do I keep going? Chronic emotional and physical pain.
I was diagnosed with depression and anxiety back in 1996. 3 years later I was diagnosed with rheumatoid arthritis. The medications for each clashed, and I ended up in a psychiatric hospital in 2004. I tried going back to work, my boss was great, and he even let me try and work from home, but I was too sick. Then I was diagnosed with IBS, and later that year had emergency surgery to remove both my gall bladder and my appendix. The following year I was diagnosed with endometriosis, which meant going by ambulance each month because I was in so much pain. Finally it was diagnosed, and then I had another 4 or 5 lots of surgery for that. I was diagnosed with osteoporosis in 2008, and fibromyalgia in 2011. Then I started breaking ribs without doing anything, because of the osteoporosis. I had 6 rib fractures and my thoracic spine over an 18 month period. The ribs are the worst because it hurts to breathe. In 2015, I was diagnosed with ankylosing spondylitis. This year I've had fractures in both feet and ended up with orthotics. I understand what it's like to live with severe depression and anxiety as well as physical disabilities. I can't know what you are going through, and no one else can walk in my shoes. We're all different.
In response to: Re: How do I keep going? Chronic emotional and physical pain.
Hope46Casual Contributor
Re: How do I keep going? Chronic emotional and physical pain.
Don't give up. I learned not to thank God for the illnesses, but for what I had learned out of them. I decided I wanted to care about others, and show that care. I also wanted to LISTEN to what other people are saying, both verbally and what was happening behind those words. Before covid, I was volunteering at my local church, helping with playgroup. I was, and still am, proofreading our monthly church newsletter. Covid has thrown a curved ball at me, because I am immunosuppressed and am in a difficult situation, particularly where there might be unvaccinated people. Playgroup, I was told yesterday is for only vaccinated families. I hope to go back to playgroup, helping out in the kitchen, cutting up fruit for the kids' morning tea. It makes so much difference if you can do something for someone else. Just ringing a friend and seeing how they are, takes away the constant thinking about yourself, and is encouraging to know that you can help others, even with your disabilities.
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