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DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
47 replies
In response to: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Doc_GonzoSenior Contributor
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
@Former-Member Sorry abou the length of the post as your last question was a tricky one to answer clearly.
There are many elements to my experiences (as there are with everyone). I used to live with fragmented identity and experience that occured across the continuum of my life. For me, in my understanding of my life, childhood was seperate from adolescence, adolescence was distinct and seperate from teenage years and teens were different and distinct from my twenties, same as 30's etc. For the last 3 years I have been working hard (with help) to see that it is me who lived in all these periods and that these experiences exist on a continuum and that they are in fact not seperate and distinct, as in I didn't just spwan in a a new character at each phase which is how I would talk about it.
Now I have developed a much more hollistic picture of myself, however there are still two clear seperations in experience. Professional and Emotional self.
Professional self is all the best bits of my personality on display for all to see (this isn't just work related, this is my default when dealing with other people). Maintaing this level of control is exhausting emotionally and physically. At this time in my life it is still the only way I can comfortably interact with people. This is a very well rehearsed lie (it took me ages to write the word lie). It is not a complete lie, not by any means, it is just a very closely guarded, well maintained front that has enabled me to function amidst chaos.
Emotional self is kept very hidden and is very invisible. This is all the parts that I have grown up believing (generally from continually being told) are wrong, ugly, bad etc. This often means that I get lost in emotions and expereinces that have been long surpressed. Daily activities adds to this backlog and it means more stuff to process later. When emotional self takes over, I completely lose track of time, space and experience because i dissappear through my 'portals' (worlds within worlds that sit like tv screens all around me). So when I am in this mode, interacting with people is almost impossible as it cause worlds to collide that causes genuine physical and emotional stress. I lose myself in these worlds as their is no pressure to be anything but the person that I want to be or have been. When emotional self takes over, it can become very dark and it has led to very destructive behaviour including self harm. I can get so caught up in the emotions and experiences that if they turn too dark (say for example a portal I have jumped through has a friend of mines child dying, this isn't true) then I act as if I am physically in that space living out this moment in time. The emotions, smells, tastes everything is very real in my mind and so is the pain that can come with it.
And this is why professional self is necessary, I can (if I am in control of it) in blink of an eye shut off the other side of me and continue on. Once again this takes monstrous amounts of energy.
For the most part I have learned to live with this very well, however as the stress mounts, I find myself losing track of my actual world because I lose all concept of time and space. I miss appointments sometimes, not because I am avoiding that particualr thing, it is just that I have lost track of what day it is and lose track tof tasks Ineed to do.
So to summarise, for the most part I use emotional self as a self care mechanism that allows me to let the locks off, by allowing myself to be me and experience the sepctrum of emotions and occasionally (it used to be for months at a time) I lose my ability to control this and I become lost in fictional worlds that are as real to me as the keyboard I am typing this message on.
In response to: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Doc_GonzoSenior Contributor
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
@BlueBay I don't see talking to yourself as strange. I do it all the time 🙂 and I often do this before I go to bed to help me prepare to go to bed.
What I didn't include in my last post was that I constantly catch myself talking to myself when I am out and about. If I let my mind wander for a second then I get caught up in whatever world I have stepped into. I have had, including recently, experiences where I have started to cry or laugh out loud, which has no relation to what is going on at the time.
My dissociation has always been a coping mechanism, to escape the abuse, stress and horror of the world around me growing up. The trauma continued into my adult years and it wasn't until I was 29 that trauma was introduced to my vocabulary.
I live with a diagnosis of complex trauma and fragmentation and disassociation are a big part of this experience.
In response to: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Unknown userMember
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Correct me if I'm wrong but it sounds like you are very in touch with the outside world & interact successfully with people when in 'Professional Mode' But because its so exhausting, you can't maintain it so the minute you are at home (alone), you throw off professional completely to 'Self Care Emotional Mode' so you can recharge. Trouble with that is you get lost here.
Does that sound right?
Really appreciate your story. Makes me think and maybe understand myself better. Thanks for that.
I'm glad you have made progress with a therapist, having integrated the childhood, teens, 20's etc Wouldn't it be good to find balance by integrating Professional & Emotion together, an overlap where they can help each other become whole, in present time together?
Have you ever watched the kids movie 'the dark crystal' Now I know why it use to freak me out. Too close yo the bone.
My experience is very similar, I understand & live how the forced personas or modes are necessary at times, around people, but also exhausting & unsustainable for long. When I'm alone, sometimes even while travelling home, I get lost, mentally & sometimes physically (have to GPS my way back), I disappear into my own world, forget the day, time, apts & sometimes place. I get lost in conversations and even movies or reading, I have to hit rewind frequently because even though that's what I'm doing, I lose blocks of time. Hate that! especially when talking with people as I have to apologise and ask them to repeat but usually I pretend I heard them which can get me into all sorts of strife.
Often I am think I've done something just because I thought about it and get cranky with myself when I find its not done.
THINGS THAT HELP
We so need routine or structures to function. My work is all over the place. I'm soooo dependent on diaries, calendars, phone reminders & alarm, But even they let me down. Tomorrow I have a psych apt and already anxious I'm gonna forget. Sometimes I cancel the day before so they don't get upset with me for simply forgetting, when I know I'm not quite right.
I have to force myself out the house sometimes, just go sit in nature or watch people walk around so I don't disappear forever. It frightens me when I feel it coming on to the walk is grounding but also the Body Scan Mindfulness Exercise....
In response to: Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Doc_GonzoSenior Contributor
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Like you, structure and routine is key. If I am not active in what I do,(such as watching tv) then I find myself getting in to trouble as I start jumping through portal after portal. Even just reconciling so many active worlds simultaneously is exhausting. So I do half things, such as go to make a coffee, jump into a portal and hours later think, did I have a coffee? and then realise that i started to make one and then got caught up in an entirely different world. If things such as an unexpected phone call interrupt my experience then I suffer genuine temporal and spacial shock, some people find that hard to believe, however I know it is as much a physical experience as it is a cognitive one.
As far as integration goes, I am working with two therapists to help me bring the final two fragments together, however I still at this point believe that I will need a major change in life situation for this to occur as many of my needs are going unmet and have been going begging for years. While these go begging, I will be constantly disappearing and reappearing as my body and mind see fit.
In response to: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Unknown userMember
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
(rate each question 0-5 re your experiences)
1. Some people have the experience of driving or riding in a car or bus or subway and suddenly realizing that they don't remember what has happened during all or part of the trip.
2. Some people find that sometimes they are listening to someone talk and they suddenly realize that they did not hear part or all of what was said.
3. Some people have the experience of finding themselves in a place and having no idea how they got there.
4. Some people have the experience of finding themselves dressed in clothes that they don't remember putting on.
5. Some people have the experience of finding new things among their belongings that they do not remember buying.
6. Some people sometimes find that they are approached by people that they do not know who call them by another name or insist that they have met them before.
7. Some people sometimes have the experience of feeling as though they are standing next to themselves or watching themselves do something and they actually see themselves as if they were looking at another person.
8. Some people are told that they sometimes do not recognize friends or family members.
9. Some people find that they have no memory for some important events in their lives (for example, a wedding or graduation).
10. Some people have the experience of being accused of lying when they do not think that they have lied.
11. Some people have the experience of looking in a mirror and not recognizing themselves.
12. Some people have the experience of feeling that other people, objects, and the world around them are not real
13. Some people have the experience of feeling that their body does not seem to belong to them.
14. Some people have the experience of sometimes remembering a past event so vividly that they feel as if they were reliving that event.
15. Some people have the experience of not being sure whether things that they remember happening really did happen or whether they just dreamed them.
16. Some people have the experience of being in a familiar place but finding it strange and unfamiliar.
17. Some people find that when they are watching television or a movie they become so absorbed in the story that they are unaware of other events happening around them.
18. Some people find that they become so involved in a fantasy or daydream that it feels as though it were really happening to them.
19. Some people find that they sometimes are able to ignore pain.
20. Some people find that that they sometimes sit staring off into space, thinking of nothing, and are not aware of the passage of time.
21. Some people sometimes find that when they are alone they talk out loud to themselves.
22. Some people find that in one situation they may act so differently compared with another situation that they feel almost as if they were two different people.
23. Some people sometimes find that in certain situations they are able to do things with amazing case and spontaneity that would usually be difficult for them (for example, sports, work, social situations, etc.).
24. Some people sometimes find that they cannot remember whether they have done something or have just thought about doing that this (for example, not knowing whether they have just mailed a letter or have just thought about mailing it).
25. Some people find evidence that they have done things that they do not remember doing.
26. Some people sometimes find writings, drawings, or notes among their belongings that they must have done but cannot remember doing.
27. Some people sometimes find that they hear voices inside their head that tell them to do things or comment on things that they are doing.
28. Some people sometimes feel as if they are looking at the world through a fog so that people and objects appear far away or unclear.
__________
The Dissociative Experiences Scale (DES). Putnam, 2011
In response to: Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Unknown userMember
Re: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
hi @Former-Member,
didnt quite understand the rate bit or understand how they are questions but out of the 28 things there i in my life time have experienced 25 of them and some as frequently as twice or more daily when you say that these are screening test questions you mean that you get asked if you experience these i have had these types of thing happen for aslong as i can remember down to even bein oblivious to my mum slapping me because i didnt pay attention to her i have already been diagnosed with ptsd and i have only just sought medical help with my other symptoms i have not been diagnosed yet but my GP strongly believes this is what i have
In response to: DISSOCIATIVE DISORDERS (from_PTSD_to_DID)
Unknown userMember