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Let's talk DID and dissociation

Let's talk DID and dissociation

Hello all

@Former-Member, @Bellarose75, @BraveOne, @Nyx, @Fluttershy1, @Maggie, @Grace20212, @NoOne, @MySunrise, @Unlonely1, @destructive, @Lemonjuice and we are sure there are others who have DID or dissociation disorders but we haven't interacted with them so feel free to add others we missed.

We noticed that there is a lot of threads popping up about DID and decided that maybe having a thread we can all chat on and ask questions and give advice to each other would be good.

We thought we would start off by explaing who we are.

We call ourselves the dragon system.

Host/main/core goes by our username due to guidelines but the rest of us are happy to say our names it also helps people know who's responding.

Here is a list of all of us that we as a working system is aware of.

So I'm going to split it up into 3 groups, littles (0-10), middles (11-17) and bigs (18+).

So my littles are :

Kelly, 4, mute and trauma holder, Eshy, main

Sarah, 6, main

Strudle, 5, wolf shapeshifter, main

Brandon

Bianca

Brittney, 7, the BBB triplets

Sienna, 8, prefers CC

Dana, 4, trauma holder, AP

Leana, 6, trauma holder, AP

Cameron, 8, trauma holder

Kelsey, 5, trauma holder

Uunala, 4, trauma holder, Eshy

Stacey, 10

Tessa, 9, FS Trauma holder

My middles are:

Steph, 15, sporty, gender fluid

Daisy, 13, Artistic

Macey, 12, smart, Eshy

Repunzel, 16/17, Fictive

Elsie, 17, littles helper

Erin, 15, trauma holder, Sh, main

Iris, 11, positive empath, littles caretaker, main

Chloe, 14, littles caretaker, clean freak (possibly ocd)

Mermaid Princess, 15/17, unknown language

Zayella, 15, sad/grief empath, inner world protector

Casey, 13, troublesome, sh

Evie, 15/16, fictive

My bigs are:

Sapphire,18, wolf shapeshifter, system protector, main

Harmony, 30, protector, main

Honey, 19, sexual

Grant, age Slider, 18-25,

Lana, 20, negative empath

Holly, age unknown, demon, system persecutor, is a main but currently locked away

Twilight, age unknown, dragon, gatekeeper

We know not all people with DID have an inner world but we do. Host created inner world as an escape when she was 9 and it has become a major part of our system. For anyone wondering twilights role as gatekeeper is literally that our inner world is surrounded by a brick wall and has a large gate outside that is a giant Forrest and twilight keeps the bad out. Holly came before twilight did so it's probably the only reason she made it in.

We also have C-PTSD, anxiety, depression, social anxiety, and panic disorder. Host is severe asthmatic as well which we suppose makes us all asthmatic.

Anyway hope you like the idea of this thread and we are happy to chat anytime but we do apologize if we don't always answer straight away

Thanks

Harmony/babydragon

262 replies

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In response to: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hi @Former-Member @Thanks for the suggestion, I have now spent some with one of the support workers, she was great and helped a lot.

Hi @MySunrise

Thanks for replying, that’s really interesting, I am in my early sixties and most of my alters are similar age and like me not arty at all! However Jane is in early twenties and is a bright bubbly alter, nothing like me at all, she maybe interested in expressing herself in art, I will suggest it.

Hearing from other DID people is great too, thanks for sharing, yes feeling alone is not fun.

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hi @Albert2 you tagging me sent me an email, I'd kind of forgotten about this place so haven't been a while. Funny timing, just waiting for therapy appointment and needing to stop because can't afford it in new year when my Medicare threshold resets.

Im not sure if it's the same but I see pictures. Sometimes still sometimes like reels. I hadn't thought of it as their thoughts before but maybe could be. Therapist has said they're memories but not sure. They can be distressing and confusing.

I get the cycle too. It's hard. Sometimes life feels like a cruel joke 😞 hope you're well

Hi @MySunrise

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hi @destructive oh yes I hadn’t remembered Medicare resetting, I have one more session before then.

I don’t literally see pictures, it’s hard to explain. When I hear an alter it is a flow of words and sentences, one after the other, when I “see” the thoughts of an alter, it is all at once, their thoughts and what they want, like being in their head like they are in mine. Don’t know if that makes any sense? The very first time it happened it scared the shit out of me, there was literally someone in my head.

If you are seeing pictures or “movies” it may be alter thoughts or memory fragments or ? Dreams can be scary too, are they alter related? I do have a persecutor alter who has attempted to k me, dreams of dying may be from him?

Yes the cycle thing sure gets me down, I wonder if the next cycle bottom is the end? We have just bought a 12 week old border collie puppy, he is a bundle of joy, this is the best thing that could have happened for me at this point.

hope your well too ❤️

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

I'm not sure where to post and don't really have anyone to tag but I'm not doing so good. I just don't feel right, it's hard to explain. I'm sick of living with this consuming sense of dread. I don't even know what I'm dreading it's just there. I have 2 little kids and I feel like a horrible mum. I have no one. I'm sure people will suggest suppoets but that isn't what I need because it's fleeting (only for the hour appointment or whatever) and an illusion because none of them actually walk life with you. It feels too much.

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hi @destructive,

I really feel for you and understand how you are feeling. Many years ago when my children were young I also had a feeling of dread but I couldn't really put my finger on about what it was I was dreading. I felt like I was constantly living in a heightened state, always on alert and my anxiety was pretty intense.

Are you able to speak to your GP about this? I can only go off my own lived experience but they way I overcame these feelings was through the help of counselling and my GP.

I have sent you an email to privately check in with you so please keep an eye out for it and respond when you can.

Having little kids is tiring enough let alone when you have such overwhelming feelings. I'm not quite sure going of what you have said how little your children are so I have included this link to PANDA in case it may be of any use PANDA. I am sure you are a great mum - being a mum, particularly to small children is one of the hardest things anyone can do. I think you should give yourself more credit and be kind to yourself. We all can only do the best we can.

Warm wishes,

FloatingFeather

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hey @destructive I wanted to pop in and offer my support. I have 2 little ones and I know that feeling that you're not good enough and horrible. It sounds like you're completely exhausted and burnt out. It's such a hard place to be and I don't have the answers cause sometimes it's just time. How old are your little ones?

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

My little ones are 3 and 8 months. Yes, I'm exhausted! I'm a solo mum so it's just me. I don't know if it's part of my dissociation or something different but I'm very sensory sensitive and my 3 year old is very loud and fast and sometimes I just can't cope with his noise and the nosie in my head and a I snap.

I do/did have a therapist but in the new year Medicare will reset (I had reached my threshold) and I'll be back to paying $100 out of pocket which is just not doable for me.

I don't know if the dread is about parenting, but it makes it harder. I need a break but the reality is it is going to be a very very long time before I have any sense of that.

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

The noise they create is something else isn't it @destructive I'm so sorry, that's such a hard place to be in without support. You need time out, to fill your own cup too. Are you part of a parenting group, like a 'mothers group'. I used to help out a solo mum by taking her little one sometimes so she could do adult things. There are people out there who want to help, maybe it's just a case of finding them 💝

In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

Hi @destructive,

It’s been a while hey. Glad you reached out for support.
What you’ve been sharing brings memories of when I was in that space, it was long ago and I wasn’t even aware of my trauma let alone my dissociation. That sensory sensitivity is so hard as is that dread and being all alone. I remember thinking I’d never get through it.
I agree with everyone’s suggestions of places to reach out. I know with the coming shut down over Christmas of most supports networks can also be the most hardest time.
Another idea could be to reach out to Salvos and Vinnies? They helped me with the this time of year often. Asking for help can be so intimidating and hard but honestly it got me through some very dark times.
Keep reaching out here, I’ll be around to share space with you. Ask away and I’ll try to answer.


In response to: Re: Let's talk DID and dissociation

Re: Let's talk DID and dissociation

@Paperdaisy so much noise. Sometimes I can cope with it and other times my skin crawls. I did have a mother's group with my first but they're not really close enough for that.

@MySunrise Im not sure how long but yes. I think I was diagnosed after/around having my first and I think it was the worst timing because it's too much to contemplate and be ok to parent. And I also notice now (sometimes anyway) when I'm not all here and know what that is and it feels awful to not be present for them the way I want. I worry I might miss something important 😞

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