@Snowie My experiences with it have mostly ended up being more positive than negative. I also worried that my children were being dragged up by themselves. I did some traumatic things to them where they witnessed me being taken to hospital by police or ambulances.
I look back now that they have grown up. My youngest was 11 when it started. I went from the mum who was there doing so much taxi driving for sports and extra curricular stuff to basically doing none of it. I had never missed a game of theirs or a school performance or anything like that to frequently missing all the big stuff. Like anything I think kids try to remember the best version of us.
There is no doubt that my kids grew up quickly and became remarkably resilient. I also want to draw a comparison that I also knew of my kids friends who had to grow up quickly when their mum got breast cancer. I don’t think it matters what the illness is. Some kids have to face that life isn’t perfect at a young age while others get well into adulthood before they deal with difficult life things.
Im writing this to you as someone who has lived through my kids reaching adulthood. The guilt and shame is leaving now as I see my kids all doing ok. If I had written this 5 years ago I probably would have written a doom and gloom post about how I was screwing up my kids.
I can now talk openly about the effect my illness has had on my kids. It’s not all roses by any means but it’s not as bad as you think either. They acknowledge some of the things that were harder when they were younger but have made entering adulthood easier than many of their peers. They will tell me what hurt the most and what was worse in my mind than in theirs. My relationships with my kids has never been stronger.
If I had one piece of advice that I think helped was that no matter what, they were told they were loved. I also tried to spend even just 5 mins a day with each of them where I could be present and fake it and smile and be positive with them. The rest of the day I could be crying in bed or not getting out of bed to watch them play sport and felt like I was messing up their lives.
Correct me if I’m wrong but it seems that hubby is ok being hands on with your kids too. That can only be a positive. It is that teamwork they’ll remember.
It has taken me a very long time to write the next sentence because when I am in the depths of depression and suicidal thinking it’s easy to justify that they would be better off without me. The truth is I think my kids would rather me be here and live a not perfect life than me taking my life. I still go there but it’s getting harder lately to follow through to my sh which can be dangerous.
I hope this helps.
PS my baby 11 year old who is 18 just rang to tell me he had just visited a surgeon and has booked himself in for surgery in a few weeks. I didn’t even know he’d made an appointment. He will always ring if he is unsure and wanted to share his news with pride. Although it is a hard thing that he is so independent because he had to be, Im also tremendously proud of the confident young man that raised himself with a village that helped.