hello all,
I have been away and very unwell for a longtime. I am sorry that I have not been here to support my fellows.
I truly hope all are doing as well as they can and that the price paid to do so has not been too high.
I have decided I must find a better way
I am presenting a discussion paper at a psyche conference in a couple of weeks.
It is mainly focused on developmental trauma and the complex ilnness it spawns.
I am hoping that through networking I'll come across someone who is working in this field.
I am presenting this paper on behalf of all adult survivors of long term child abuse. We have grown illnesses that we were never meant to have.
This is my path from this day forward. I will no longer allow the sector to ignore us as people have ignored our entire lives.
We are not liars, fakers or attention seekers, we are warriors fighting a battle not of our making.
I aint good for much. But I can speak publicly with ease, I regularly publish discussion articles in sector forums and these articles promote a lot of discussion, but talk is cheap.
I am tired of being sick.
I was not born this way I was made by a monster.
Though I cannot metaphorically slay the monster. I will make the white coats listen. I will plead for a better way for all of us.
I am so tired of all this but I will not lay down and just fecking die.
Society let us down whenwe needed rescuing. It is time they were held to account. To take responsibility. I refuse to listen to another quack tell me i'm out of treatment options.
Haven't we suffered enough?
I say yes yes yes.
Though I'm am still acute I have to do something. my Doc and I are now desperate, there are no more meds to try. No more therapies untried.
My condition is deteriorating. And my body is following my mind. I am deficient in vitamin D to the point that my body no longer produces it, so the sun has nothing to activate. My thyroid is also failing with thyroxine levels dropping lower each blood test no matter how much thyroxine supplement I take.
I have developed severe tachycardia that does'nt react to meds, And my blood pressure is having the same issues.
My Doc, George is right now getting second and third opinons, and combing through the last 5 years of MI research for options.
We know that this body stuff is connected to deteriorating mental illness and we have had that confirmed by a neuropsychologist. Apparently it's not overly common but happens often enough for there to be plenty of data to support it.
And dammit! It aint right!
The very worst thing that has happened is that my 13 year old daughter refuses to see or speak to me because she is freaked out by my tics and dissociation. I have had no contact with her for 6 months. I write to her every fortnight and so she recieves a letter in the post regularly. I understand and I will always put my little girl before myself. But my heart is truly broken and she was all I had left. No family at all now. And yes she may well come good in time. But that is no comfort because how long is time?
This illness has cost me everything.
And I was made this way not born.
it is a classic tragedy. And I'm going to shout and shout until people take notice.
We as a section of the population, we surviviors of extreme, systematic and long term child abuse must have a better way!
I am done sitting quietly in the corner.
Recovery? Well you sector people - prove it! so far all I see is lip service. Peer support? Bullshit! Peers whh have degrees and years of experience in mental health are not peers.
Peers are people who are just like you. That was the original idea behind this model.
F2ck it.
I'm done.