Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.
ButterflyWingsSenior Contributor
Not sure how to begin with this... My Mum has rapidly-progressing Parkinson's and also non-Hodgkin's lymphoma. She lives with Dad in a retirement village. It's hard watching this illness journey with her. Every time I see her she's weaker and more frail. Wondering about advice or tips etc. Or maybe just share. Sorry...clumsy at this as I've not been on here for a couple of years...
In response to: Untitled Yet...??
tymeModerator
Hey @ButterflyWings - maybe @Shaz51 can share some of her experiences?
In response to: Re: Untitled Yet...??
Shaz51Senior Contributor
Hello @ButterflyWings how are you going today xxx
Has her docto suggested age care ho.e for your mum ??
I have been looking after my mum as her carer for years at home until she broke her hip in hospital, they took her to a bigger hospital where she got a new hip and then she got an infection, then Covid19 and now dementia
Through doctors assessment that mum needs. High care and home was not suitable any more for her
Finally have her back into our local aged care part of our local hospital
Here for you if you like to have a chat xxxx
In response to: Re: Untitled Yet...??
ButterflyWingsSenior Contributor
In response to: Re: Untitled Yet...??
Shaz51Senior Contributor
How are you going today @ButterflyWings
In these situations we do forget about ourselves and what we need too , I do all the time xx
Sending you hugs and am here for you
In response to: Re: Untitled Yet...??
ButterflyWingsSenior Contributor
Hugs aplenty! Don't know how to express today. Really sad and missing my family yet too numb to cry. Thank you for reaching out 💜 Hoping today's been okay to you @Shaz51 and @tyme 💜 Yes, myself has been neglected. A little lost as to how but I guess we muddle on somehow...as that song goes.
In response to: Re: Untitled Yet...??
DeterminedSenior Contributor
@ButterflyWings no tips or advice unfortunately but wanted to say thinking of you and can relate in some way to all of that. For us the process of coronary heart failure is accelerating.
Beging a process of arranging care for my father in law who is in hospital but was at home with us. Has been a roller coaster week here not knowing how much time we have left. Happy to 'listen' if you need .
In response to: Re: Untitled Yet...??
BPDSurvivorSenior Contributor
How are you @ButterflyWings - how's your mum?
In response to: Re: Untitled Yet...??
ButterflyWingsSenior Contributor
In response to: Untitled Yet...??
amber22Senior Contributor
Hey there @ButterflyWings
I'm sorry that you are feeling this way, and thank you so much for sharing how this experience is making you feel. I can tell that you care so deeply for your family and your mum.
Please remember that as it may be really tough to go through this alongside your mum, it is really important to make sure that you are taking care of yourself too.
I've linked below a Peer Group Chat that we did we few weeks ago that highlights how you can take care of yourself, while caring or looking after someone else. Maybe this is something that could help with how you are feeling if you need any ideas of how to also channel some energy into looking after yourself.
Here is that Peer Group Chat link: https://www.sane.org/images/peer-support/chat-transcripts/Caring-for-Yourself-While-Caring-For-Someone-Else.pdf
Sending virtual hugs and I am here with you,
Amber22
Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
SANE values diversity. We are committed to providing a safe, culturally appropriate, and inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.
Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
SANE values diversity. We are committed to providing a safe, culturally appropriate, and inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.
You’ll soon be able to use one secure login to access all SANE services.
For added security, members are now required to log in with their email address and password - member names are no longer supported for logging in.
If you had a Forums account before 19 May 2026 and haven’t set up your new login yet, you'll be prompted to set up your new secure login when you sign-in.
Fields marked * are required
