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My son

TimeSenior Contributor06 May 2021, 2:13 pm AEST

My son

I have a question. My son has been diagnosed with Negative Schozophrenia, approx 2yrs ago. He is on the depot injection. He appears somewhat relaxed and stable however the side effects are concerning in fact sad. My son was trim and slim 2yrs ago now he looks like he is 6mths pregnant. He never liked sugary drinks much now he craves for them as well as fatty fried foods? My son took a great deal of pride in his hygiene now he neglects it badly in fact he will shower 1 or 2 per yr I could count the showers he has has if I didnt nag he would not shower. His communication is sometimes good but overall 1 word answers and doesnt initiate communication. I am worried as I think medication should in this day and age be making someone happier and healthier not causing more problems. What do I do. I want to take him off this injection as Ive recently asked of a review and im getting to the stage whereby I feel guilty allowing him to go down this

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In response to: My son

GwynnSenior Contributor06 May 2021, 5:28 pm AEST

Re: Apply to become a Community Guide on the SANE Forums ?

Can he be put into contact with a mental health OT, with your concerns? Negative effects of schizophrenia aren't easily treated with medication.

In response to: My son

BunniekinsSenior Contributor06 May 2021, 7:48 pm AEST

Re: Apply to become a Community Guide on the SANE Forums ?

@Time Hi Time it is the type of medications that your son is on that is causing these side effects unfortunately. Dont know what to say as I have a son2 with the same problems. xxx

In response to: Re: Apply to become a Community Guide on the SANE Forums ?

TimeSenior Contributor06 May 2021, 8:58 pm AEST

Re: Apply to become a Community Guide on the SANE Forums ?

Hi Greenpea, I dont think it is appropriate to allow people to have this kind of medication nowing it has or can lead to very serious side effects. I am feeling so strong about these thoughts that I need to start to stand up for my son and or encourage him to do so assertively. I know in Califorinia USA they are having trials with experimental illict drugs which have proven to given permanet relief to people who suffer with PTS and anxiety and other illnesses. I do not know why our Govt lags behind and giving our family members drugs that are and can be very harmful for example diabetes stroke heart attack are resulting from these medication. I think NOT I also think NO MORE.

Sorry ranting but im full of anger

not at you at the system. ITS our families these drugs they give our children our wifes our husbands are bad they are not helpful they dull the brain they block our family this is how I see it and I cannot help it.
TIME

In response to: Re: Apply to become a Community Guide on the SANE Forums ?

TimeSenior Contributor06 May 2021, 9:22 pm AEST

My son

Hi Gwynn I was unaware of OTs in mental health but ill check that thanks. He has negative schezopherina which is the worse sort. I would sitll like another opinion and will get one for him. He was smoking heaps of canabisis after not dealing with some truama in his life. He regressed and isolated for yrs. I think counselling visiting a phsycologist and keeping busy and lots of other life healing options are available in this world I'm just not into medicating people until the people themselves seem lost and alone this tears at my soul my whole being it breaks me

Time

In response to: Re: Apply to become a Community Guide on the SANE Forums ?

BunniekinsSenior Contributor08 May 2021, 3:19 am AEST

Re: Apply to become a Community Guide on the SANE Forums ?

@Time I agree with you wholeheartedly. My son2 suffers so much as even with this medication his schizophrenia symptoms are still with him. We have been given one extra choice re meds with him which will require him to have a blood test once a month .... no way. He couldnt cope with that. So we are stuck with the meds he is currently on which make him super tired and give him a belly..... so unfair. xx

In response to: My son

GwynnSenior Contributor08 May 2021, 8:17 am AEST

Re: My son

You might also want to ask about if he can be linked with the hospitals exercise physiologist as vigorous exercise is generally considered to be good for trauma. What does your son want?

In response to: Re: My son

TimeSenior Contributor08 May 2021, 10:53 am AEST

Re: My son

My son acts and sounds well apart from a slightly concerned look at times. I feel for him he appears trapped. He will be seeing a physio therapist for exercise and a hypnosis for trauma and hopefully to stop cravings. Then with review planned either to cut his medication in half or try another or to give it all away and go the holistic pathway I will encourage the later. I will walk every inch every mile with him I will be there I’m love for him is greater than any words

In response to: Re: My son

GwynnSenior Contributor08 May 2021, 11:34 am AEST

Re: My son

My understanding is that gradual tapering off of medication is associated with better results than giving it all away at once. Also, medication + therapies + community support is better than going without medication, at least in the early years.

Have you run your plan by your son's GP? They might be able to help you advocate for your son to change his meds.

In response to: Re: My son

TimeSenior Contributor08 May 2021, 2:14 pm AEST

Re: My son

Hi Gwyn

yes think meds need change or another option no meds just talking to a psychologist and being involved in community would be a healthy start. He is in charge of his life choices I will support and encourage his decisions as long as I think they have merit and I think are good for him. If he had no choices then I would encourage choice for him. He is smart intelligent and kind and gentle he is a beautiful human being. He knows what he wants if there is a plan and a pathway we will together find it. I'm over medicating our loved ones and watching them dumb done with blank looks and you sense a I need your kindness look. Thank you for your advice but 2yrs with ups and downs and doing one thing fixing one and creating more issues enough. Medical professionals need to get it right or go back to the drawing board that's what I think. I'm not a fan of so called people that all they want to do is drugs without looking at the overall picture can't have one without the other!!!

In response to: My son

KrishnaSenior Contributor08 May 2021, 8:03 pm AEST

Re: My son

Hi @Time I can relate completely with your concerns as my daughter is also on depot injections. Unfortunately side effects do cause weight gain. My daughter also has limited communication with the team looking after her, short one word answers, if any. Sadly she no longer communicates with me at all. Personal hygiene is also an issue. Her medication keeps her calm and is lessening the severity of her schizophrenic symptoms to a degree but all I can say is that without her meds, things are a lot worse. We live in hope that one day a better form of medication is created. Sending hugs and support.

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